Hi Group. My name is Kelli and I am 41. I was [...]
Hi Group. My name is Kelli and I am 41. I was diagnosed with Nasopharyngeal Cancer on May 1 of this year. I have gone through three rounds of chemo (cisplatin, 5FU and taxotere). Today I started my chemo (ciplatin) and radiation phase for the next 7 weeks. I am just wondering if there are any long-term survivors of this cancer. It is in my head, 2 lymph nodes in my neck anda small spot on my pelvis. I am just feeling overwhelmed because I really don't know of anyone who has this cancer. I am feeling sad and angry...but I want to be hopeful. Most days I am but today has been hard. Thanks for reading!
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Hi Kelli,
I have definitely heard of it.Head and neck ca is somewhat common and there are whole depts. dedicated to it. Perhaps there is a group of people who are on another site. Try inspire.org.
Sounds like you are being treated in a powerful way. How are you doing? Where are you going for treatment?
Hi Marion
I have heard of head and neck cancer, my sister around 4 years ago, had throat cancer, she had surgery and rads and chemo, her life style had been very unhealthy, alcohol and abuse of
Hi...just got your message. My cancer too was caused by a virus -- epstein
barr. I've never smoked or drank so it came as a complete surprise. My
cancer is in my head, neck and very small spot on pelvis. I just finished
week one of chemo/radiation. How is your radiation going? I've heard that
about week three it is awful and you can't swallow! I'm feeling pretty
good right now. Where are you being treated? I am being treated at
Vanderbilt in Nashville and also here in Evansville, IN where I am from.
It is nice to know of someone else who has close to the same thing -- I
mean, I'm not glad we have cancer, but some days I really feel all alone in
my cancer!
Kelli
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I also had inoperable throat cancer caused by a virus. Mine was the HPV
type. I went through chemo and radiation treatments at Dana Farber in
Boston. I am now three years cancer free due to the treatments I received
and feeling great with minimal side effects. I had a feeding tube inserted
due to recommendation
Charles, The odds of your type of cancer are so very good and I just know
that you will be fine. My doctor at Dana Farber told me that throat cancer
caused by a virus has much better odds of success than other causes. I've
been cancer free for three years now and feel wonderful. I am so very
thankful for the treatments that have been discovered to cure my throat
cancer. Yes, you still have a few more weeks of misery but it is all so
very worth every minute of discomfort knowing you will be a survivor.
Hi Kelli,
Was reading the posts in response to your original post. How are you doing with the radiation? Thinking of you as I say a prayer.
Marion
Hi pyjean
I am sorry to hear of your news, I am praying for you.
God bless you Helen
Hi Kelli, sorry for all you are going through with your cancer. lots of us living with the disease agree it is like being on a rollar coaster. I have been up, down and stable with the different phases of this disease . Stay as positive as possible and live one day at a time . We are all going through the same thing, never knowing what tomorrow might bring. hang in there; best wishes for you. Marilyn
Hi Kelli, I think MarilynS describes the feeling we all have, insecure, but we are still here.
God bless Helen
Breast cancer still going strong now spots on liver not cancer just spots
also tumors on the outside of the lung. One on each lung. Have had each
lung tapped and lots and I mean lots of liquid came out. Now I can breathe.
A lot better....thank God.
PJ