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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

6 days ago · @mommyjd · Post treatment moral support

Stage 4 throat cancer survivor.,. 2 years post treatment. Here for morale support! [...]

Posted by @mommyjd, 6 days ago

The feeding tube was a lifesaver for me..although I hated it. I also found peppermint oil to help with any nausea…I just sniffed it out of the bottle. […]

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Tue, Jan 9 8:03am · @surfertam · Paratoid gland squamous cell carcinoma

Has anyone here ever dealt with paratoid gland squamous cell cancer? Post surgical paratoidectomy followed by radiation and still searching for answers to cure. Any positive results with other options tried? Thanks@ [...]

Posted by @carolcowan, Tue, Jan 9 8:03am

I’m Carol, a moderator here. I’m sure you’ve been told that parotid gland squamous cell cancer is rare. Also 80% of parotid gland tumors are benign. When something is that rare it can be difficult to access recent reliable sourced literature about it. I’m a retired RN with oncology […]

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Fri, Jan 5 6:02pm · @willieb · hands free voice

Hello everyone! First of all I'd like to say thanks for all the helpful tips I've gotten from this community so far. I had my total laryngectomy in May of 2017 and so far things are progressing well. At this point I have the tep voice prosthesis and have recently [...]

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Tue, Jan 2 2:04pm · @luisa · From Dana-Farber: Salivary Gland Cancer: What are the Symptoms?

From Dana-Farber: Salivary Gland Cancer: What are the Symptoms? Salivary gland cancer, a type of head and neck cancer, is a rare disease in which cancer cells form in the tissues of the salivary glands. Read more at . [...]

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Tue, Jan 2 2:46pm · @leoff · Cancer of the tonsil

My husband was treated for cancer of tge tonsil caused by HPV . He underwent 40 radiations and 2 chemo treatments almost 2 years ago. Now his latest scan shows a 3 cm tumor on his kidney and new lesions on his liver. Is this common for a metastasis of [...]

Posted by @carolcowan, Tue, Jan 2 2:46pm

Leoff, I did see that they talked about the average time of diagnosis of metastasis from HPV cancer to distant sites being between 16.4 months and 24 months.
Carol […]

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Dec 31, 2017 · @beakmom · Newby to group, not to cancer

I have recently been diagnosed with squamous cell carcinoma. They found a tumor on my left tonsil spread to adjacent lymph nodes. Lymph nodes I know from. I have been fighting Non-Hodgkin's Lymphoma since 1995. When we found the enlarged nodes in my left neck, we expected to find isolated [...]

Posted by @carolcowan, Dec 31, 2017

NED is No Evidence of Disease. It’s the new catch-all that can replace cancer-free, remission, or “cured” (which is really a term that shouldn’t be used for cancer in general). It’s the goal with cancer treatment.
Carol […]

Liked by beakmom

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Nov 26, 2017 · @sdcsurvivor · Salivary Duct Carcinoma

Anyone here with salivary duct carcinoma? I know it's a long shot. [...]

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Nov 20, 2017 · @annab · nerves each side of tongue destroyed by radiation

my hubby is 1 year and a half since radiation... nerves gone each side of tongue.. so tongue does not work... unable to eat drink or even swallow saliva... he drools all the time... it's so sad...his tongue doesn't work and the nerves will never regenerate... so physical therapy will [...]

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Nov 14, 2017 · @shaun · Maxillary and mandibular cancer

I had maxillectomy and paletectomy both sides Jan 18 2016. They also found left mandible cancer at the time of surgery. Treated with chemo and radiation. Now I have Stage 4 mandibular cancer and require major surgery to remove my mandible Dec 1 at Loyola. Very confident in the surgeons! [...]

Posted by @shaun, Nov 14, 2017

I have Dr. Thorpe and Dr. Pittman. They are both excellent surgeons. They do a lot of head and neck cancer patients. […]

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Nov 10, 2017 · @milroybum25 · Oral Cancer

I had surgery back on January 31 to remove a cancerous tumor from my jawbone. It was a 14 hour surgery to remove the tumor from the jawbone and reconstruct the jaw with skin and bone from my leg. I had over 35 lymph nodes removed, a tooth, and nerves. [...]

Posted by @stevet57, Nov 10, 2017

Had tonsil cancer stage 4, 8 years ago. Went thru all the same treatments, chemo, radiation and I am still here but it’s a different me. I have no complaints about the extra years God has blessed me with extra years to live life. So you see it can be […]

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Oct 23, 2017 · @gdp1943wls · CAR T cell therapy

Is CAR T cell therapy been tried in head and neck cancers? [...]

Posted by @gdp1943wls, Oct 23, 2017

Thanks very much! Howard! […]

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Oct 11, 2017 · @dmc1025 · Acinic cell carcinoma to parotid gland in 1988

Hello, I am happy to stumble upon this site. Long ago, at the age of 30 in 1988 I was diagnosed with a tumor wrapped around the tail of the parotid gland. Surgery concluded it was acinic cell carcinoma and was followed by many weeks of radiation. While I am [...]

Posted by @dmc1025, Oct 11, 2017

Carol: OMG thank you for your response. I didn’t realize ice shavers were available. I’m off to Walmart today to get one for sure. My crushed ice obsession has become out of control and I know any minute one of my many teeth, crowns or fillings are going to retaliate. […]

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Oct 6, 2017 · @tom1947 · Exercise

As fall gets here I will not be able to walk as much. What have you found to be the best exercise programs for winter. Tom [...]

Posted by @aliceko, Oct 6, 2017

I go to the gym – LA fitness. Runs me $30 a month. Very close to my house. I have a treadmill at home that my husband bought for himself. It never gets used by either of us. Just takes up space […]

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Oct 7, 2017 · @willieb · Thick saliva

Hello! How everyone is having a GREAT Sunday. Recently I've been experiencing thick saliva in the back of my throat. It seems to be interfering with my voice prosthesis. Does anybody have any tricks to thin out this saliva? Any help would be greatly appreciated. Thank you in advance [...]

Posted by @tom1947, Oct 7, 2017

I gargle with diet sprite or diet ginger ale. 

Tom Heinmiller  […]

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Nov 9, 2017 · @spiritofsol · Advice - Employment

I am a caregiver to my wife who is being treated for Stage IV squamous cell carcinoma of the retromolar trigone. We moved to Columbus in April, she had major surgery in August and I just got laid off. We are new there any employment support organization for cancer [...]

Posted by @spiritofsol, Nov 9, 2017

Thank you. […]

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