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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

4 hours ago · @karen1125 · 80 yo mother just dx with base of tongue cancer spread to 4 lymph node

My mother is fairly active. She was just recently dx with base of tongue cancer and has spread to 4 lymph nodes. She lives independently. I’m looking at the tx options and I cannot see my mom making it with a feeding tube at this point in her life. The [...]

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4 days ago · @tomjkt · Metformin for HNSCC

Hi all, I have been reading studies showing that diabetes type 2 drug METFORMIN may have some impact on shrinking tumors and increasing over all survival. I am wondering if anyone here is taking/has taken this drug and has any comments. Do you think its helping? Have you had any [...]

Posted by @charles, 4 days ago

I like the adoptive t cell trial idea as i believe it holds real promise. Metformin is well tolerated with minimal side effects. It has been shown to be active in a variety of cancers: Metformin appears to induce responses in a variety of cancers and it could certainly […]

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Tue, Jul 31 11:44am · @ponderit · Neeed Legal Help

Out of all the places to be discriminated against, I have been discriminated by no other than the office of Civil Rights. During the beginning of the process, i was asked what my disability was. When i submitted my story. I was told I could not put Walgreens and Cigna [...]

Posted by @carolcowan, Tue, Jul 31 11:44am

I understand your frustration. You've got enough on your plate without having to deal with fight`ing to get the care you need. I'm sure you realize that the more contentious the situation gets, the less your chances are of getting the results you seek. That's not just in medical […]

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Sat, Jun 30 4:17pm · @bethcasbeer · Excessive phlegm after neck cancer

I am asking for a close friend who had surgery in Aug.2017 for cancers in her mouth and neck area. Cancers in her throat were next to her voice box but they did not have to remove her voice box. Since this surgery she has not been able to swallow [...]

Posted by @bethcasbeer, Sat, Jun 30 4:17pm

Thank you Dotti for your input and for sharing your and your husband's story. Good luck to both of you! Keep up the positive attitude! […]

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Mon, Jul 30 3:24pm · @beakmom · I found another lump-HPV strikes again

After finishing treatment for the squamous cell carcinoma on the left side of my neck, I have now discovered a new lump on the right side of my neck. Could this just be a reaction to the treatment? Or something? [...]

Posted by @carolcowan, Mon, Jul 30 3:24pm

Good for you! It's also great to hear that you're optimistic about the scan results.
Carol […]

Liked by beakmom

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Tue, Apr 24 12:10pm · @wojahns · Long term open wound

After multiple radiation sessions following multiple chemo treatments my wife’s neck has an open wound under her ear. It is about the size of a half-dollar. She’s had it for about two years so far and it is getting marginally better under treatments with Santyl ointment and occasional Medihoney. The [...]

Posted by @wojahns, Tue, Apr 24 12:10pm

Thanks much for your feedback. […]

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Sun, Apr 22 10:02am · @garth · Throat cancer and a bag heart

Has anyone had bypass surgery thrtheoat trout muchradiation...breathing getting bad.. dumber by the day roblems....please pass anything ...5 weeks out of radiation.going thru much same...thanks [...]

Posted by @carolcowan, Sun, Apr 22 10:02am

I'm Carol, a moderator here. I'm not sure what you're asking, except you sound like you're really having difficulty. If you can't breathe well, pain is increasing, or you're not getting enough fluids you need to call the doctor even though it's the weekend. You may have something obstructing […]

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Sat, Apr 21 10:37am · @ozark · Lymph node spread

My husband has a laryngectomy last August and two PET scans have just shown cancer in lymph nodes in his neck and thoracic area. Can anyone offer any insight about treatment? The one doctor said further tests would be need to see if thoracic nodes are even operable. Radiation is [...]

Posted by @carolcowan, Sat, Apr 21 10:37am

No, your husband is not being unreasonable at all. The people you're looking for who can give you EXACTLY the answers you're looking for are palliative care! You can be followed by them and the doctor you like who suggested them. I like him for suggesting them! They'll see […]

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Tue, Apr 17 12:35pm · @smunshi · Neck tightness

I am stage 4a larynx cancer survivor. I have completed 5 yrs. cancer free kourney on 16th April 2018. My neck is always suffering from acute tightness otherwise life is good. Ultimately I accepted this as my normal life. [...]

Posted by @esther2k5, Tue, Apr 17 12:35pm

I also have limited range of motion and minor tightness in my neck though do not do the exercises because it doesn't really bother me.
If I knew when I was diagnosed what I much later figured out, I would have pursued an alternative route and would have had my […]

Liked by Smunshi

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Thu, Feb 8 1:18am · @roseyfair · Stage 4 cancer of the submaxiallary gland

I have salivary gland cancer stage 4. It has metastized to both lungs. I had my submaxiallary gland removed, a neck dissection and two more surgeries. I had 33 radiation treatments. My radiation doctor told me there was a 96 percent chances I would be cured. About 6 months later [...]

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Mon, Jul 30 2:41pm · @beakmom · How long after treatment ends will my taste buds be screwed up?

I find myself becoming very depressed every time I try to eat, and the food tastes like bitter sawdust. Then I CAN'T eat. I am a "live to eat" rather than a "eat to live" personality. They are placing a feeding tube today, so I won't lose weight. But I'm [...]

Posted by @marins, Mon, Jul 30 2:41pm

This is great news, beakmom! Getting rid of that darn PEG tube and learning to enjoy real food again is a real milestone! If you're like me, it will take some time before you like some of the things that used to be your "go-to's" but it should eventually happen. […]

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Tue, Feb 6 3:15pm · @wojahns · Chemo for life?

My wife is in her sixth year fighting cancer that spread from the back of her throat to nearby lymph nodes to nearby behind her ear canal. The multiple tumors have been defeated one at a time with radiation, chemo, and multiple immunotherapies (many in trials). Now the cancer is [...]

Posted by @wojahns, Tue, Feb 6 3:15pm

The rind has been stable (no growth) for more than 6 months now (slowly shrinking). […]

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Wed, Jan 31 6:41am · @albert · Continuous Chemotherapy

Should a person have chemotherapy for 24 hours a day for a hole week as my partner did [...]

Posted by @albert, Wed, Jan 31 6:41am


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Fri, Jan 26 1:18pm · @dotti · Esophageal Lumen Restoration post radiation

My husband’s battle with SCC throat cancer started 1yr ago, when in 6wks he lost 30 lbs, had emergency hospital admission to secure PEG feeding tube and hemp port once his throat cancer was dx. We followed “standard routine treatment” of 7-wks daily radiation with a 1X weekly cisplatin IV [...]

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Tue, Jan 23 1:26pm · @bethcasbeer · Inability ti eat after throat surgery

Has anyone had throat surgery and been unable to swallow and eat afterwards? If so , was there any treatment for it? [...]

Posted by @bethcasbeer, Tue, Jan 23 1:26pm

Thank you for sharing your experiences. I am asking for a friend, and your replies are helpful. […]

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