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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Thu, Jun 6 9:34pm · @denisesongs · Sugar...

https://www.theatlantic.com/health/archive/2019/05/food-cancer/589714/

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Posted by mairs, Mon, May 27 8:15am

I think eating healthy is a great goal, but if you are always stressing about every guilty pleasure, it’s working against you! Empty calories are usually the fun ones and everyone has to balance their intake on an individual basis. Enjoy your life! Be thankful...for everything! Forgive. Be blessed!!

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Posted by juliem, Thu, Jun 6 9:33pm

Carol,
You are a special person who has the strength to handle a whole family’s worth of health issues, including your own. You have taught us all to stay the course no matter what, and I truly believe your guidance gave me the strength to go into treatment with confidence. [...]

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Fri, Jan 25 1:14pm · @charles · Does Ginger Prevent Nausea?

Several posts have recently suggested Ginger can reduce chemotherapy associated nausea. Anyone have any experience with this? https://news.cancerconnect.com/treatment-care/ginger-supplements-reduce-chemotherapy-induced-nausea-3B6rHRbu9keWrwgbJujyTQ/ [...]

Posted by maclaurie, Fri, Jan 25 12:58pm

I drank mild ginger tea and took Zofran for nausea. This seems to help. I took Colace for the constipation which also made a difference. Lauriemacc

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Liked by ronman

Posted by anusuya, Fri, Jan 25 1:14pm

We used Smooth Move tea to balance the constipation that cropped up after days of zofran. He was on 3/day for a long time.

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Thu, Jan 3 8:01am · @tedpro · Status of Teds Laryngeal cancer

I have been treated for the past year with laryngeal cancer ( T4 N2 supraglottic and hypopharyrx squamous cell carcenoma. I have had chemo for 7 weekly treatments staring in February. The 3 tumors in my neck decreased in size which was deemed very positive. Then I had daily radiation [...]

Posted by tedpro, Wed, Jan 2 7:43pm

I don't recall the names, however one of the woo chemo had platinum in its name. I understand that it was there typical chemo agreed by the 25 OR SO MD's on the review committee. My doctors that reviewed the test results seemed pleased with the results. They said however [...]

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Posted by charles, Thu, Jan 3 8:01am

Platinum based chemo is standard and the side effects you are experiencing from the radiation are difficult and frustrating. Keep discussing them with the doctors as there are things that can be done.
C

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Mon, Apr 1 9:34am · @michaguz · New Community Member Here. Neck Cancer being treated with Radiation

Hello all . I an new here but not new to Cancer . I had NHL 10 years ago and was treated with Rituxan and Chop . Now I am in my 5th week of treatment with is radiology and chemo . I have to say that I am struggling [...]

Posted by charles, Mon, Apr 1 9:11am

congrats on finishing what i think is one of the more difficult treatments to go through. Have you tried smoothies or milkshakes with protein? I find these to be a great source of calories and they go down pretty easy
C

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Posted by garth, Mon, Apr 1 9:34am

They were basically swallowing exercises that I was to do daily. One was after every swallow..keep mouth closed and go hmmm and swallow again. The main one that really helped me was to swallow like you were swallowing a golf ball..a power swallow. helps keep throat muscles strong. Hope that [...]

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Liked by charles

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Dec 22, 2018 · @boblane · Does T.O.R.S. surgery require neck dissection?

If you have TORS HPV tonsil surgery do you also need to have a neck dissection? pet scan shows no nodes involved just tonsil with no spreading [...]

Posted by boblane, Dec 21, 2018

a DR made it sound like 2 go together?
I'm going to see surgeon on the 31st for his opinion

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Posted by charles, Dec 22, 2018

They often do go together and the lymph node dissection can be quite important in determining treatment. Its good that you are seeing a surgeon that specializes in this procedure; https://news.cancerconnect.com/head-neck-cancer/overview-of-lip-oral-cavity-cancer-icAlRmmDwUGO1LpR1A6B1w/

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1 day ago · @treebyriver · Immunotherapy Easier Than Chemo?

Hi I am coming up on my fourth immunotherapy at MDA in Houston. I am finding that I am having to unlearn some of my expectations with experiences with chemo since immunotherapy is different and at this point easier.

I have had small skin rashes, another level of fatigue, and other

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Posted by kearns, 1 day ago

You tell Grace S. F, that was pressured into chemotherapy in which she did not want. She died 7/17/2019 in care of doctor Wright who was truely wrong... Grace S. F, wanted the OX40 SOLID TUMOR CLINICAL TRIAL. NOT BEING WRITTEN OFF BY YOUR social palliative care team that specialize [...]

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Posted by charles, 1 day ago

One would expect the rash to resolve once the drug is stopped. How long ago was the Durvamalab discontinued? I do think i have read however that some of the immune side effects can persist. Are you on any other medications ?
C

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Dec 8, 2018 · @charles · Tissue Agnostic Genomic Based Treatment--Share Your Thoughts

I wanted to share a recent blog about the FDA approval of a 2nd "tissue agnostic" cancer drug. All patients should understand this emerging shift in how cancer can be treated. Its happening quickly, will create confusion, take awhile to be incorporated into how doctors evaluate and manage a cancer, [...]

Posted by pvaritimidis, Dec 7, 2018

Maclaurie I agree with you 100%!! Thank you Charles.l
Paula

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Posted by mrtaylor, Dec 8, 2018

There are many clinical trails testing againsts specific mutations. I saw this one for alk, https://clinicaltrials.gov/ct2/show/NCT03310541

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Liked by esther2k5

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Sep 24, 2018 · @larryf · Treating cancer after lung transplant for IPF

Now have tumors on my face,has anyone taken chemo treatments,while taking immune suppressive to keep my lung from being rejected [...]

Posted by charles, Sep 24, 2018

@larryf There are ways to do this effectively; i am assuming you are being treated at a major cancer center if you have had a lung transplant. What kind of cancer do you have?
C

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Sep 24, 2018 · @brodar1971 · Excess thick mucous following radiation treatment laryngeal cancer

I had 35 radiation sessions in 2010 to eradicate laryngeal cancer. Since then I have had excess mucous build up that sometimes almost chokes me. It is embarrassing to be in public and have to cough up this thick somewhat opaque substance and either spit it out (gross) or into [...]

Posted by esther2k5, Sep 18, 2018

Best wishes for your scan tomorrow, Garth.

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Posted by charles, Sep 24, 2018

With regard to the initial questions has anyone had experience reducing the amount of mucous following treatment?
C

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Sep 24, 2018 · @bridgette · Head and neck cancer: were here for support!

I got diagnosed with head and neck cancer and started treatment April 24, 2017..I remember coming on this site and reading about others experiences, and it helped me tremendously..I had alot of unknown fear, and I did not know what to expect, because everyone's experience and healing is different..if there [...]

Posted by garth, Sep 19, 2018

Bridget...best of luck it will be fine. I go for my 6 month scan today also. Hang in there..
Garth

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Posted by charles, Sep 24, 2018

Glad to hear things are moving forward and wish you the best with the scans
C

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Sep 24, 2018 · @888661 · HOPE! I was 4 Stage 4 plus nano pharyngeal tumor, and given few weeks

there's hope! for head and neck cancers, I was a stage 4 plus , very advanced naso-pharyngeal tumor, big as my hand, inoperable , given few weeks to live. Today is two years and few weeks, I survived the evil, if anyone needs help, I can help, I swear! god [...]

Posted by 888661, Aug 30, 2018

I think it’s wonderful!

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Posted by charles, Sep 24, 2018

Congrats on the success; what was your treatment?
D

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Aug 21, 2018 · @karen1125 · 80 yo mother just dx with base of tongue cancer spread to 4 lymph node

My mother is fairly active. She was just recently dx with base of tongue cancer and has spread to 4 lymph nodes. She lives independently. I’m looking at the tx options and I cannot see my mom making it with a feeding tube at this point in her life. The [...]

Posted by dotti, Aug 21, 2018

Good morning, not being familiar with the term IMRT radiation, I went back to treatment center for verification of what we had to learn yes everything they followed was under the IMRT regiment for HN disease; the only thing I believe missed was swallow studies pre and during in order [...]

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Posted by carolcowan, Aug 21, 2018

Dotti,
You and your husband have had a rough time, but your attitudes are good. You're an inspiration for many others, the definition of a great caregiver. Thank you for the sharing you do here.
Carol

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Sep 12, 2018 · @tomjkt · Metformin for HNSCC

Hi all, I have been reading studies showing that diabetes type 2 drug METFORMIN may have some impact on shrinking tumors and increasing over all survival. I am wondering if anyone here is taking/has taken this drug and has any comments. Do you think its helping? Have you had any [...]

Posted by ponderit24, Sep 12, 2018

Please look into AHCC, I believe it was the reason for non reoccurance of my stage 4 tonsil cancer. 3 grams a day split into two doses or at worst taken at the same time

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Liked by esther2k5

Posted by tomjkt, Sep 12, 2018

Very interesting. I am not familiar with this supplement. I will certainly look into it. Best regards

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Oct 8, 2018 · @bethcasbeer · Excessive phlegm after neck cancer

I am asking for a close friend who had surgery in Aug.2017 for cancers in her mouth and neck area. Cancers in her throat were next to her voice box but they did not have to remove her voice box. Since this surgery she has not been able to swallow [...]

Posted by wojahns, Oct 8, 2018

My wife struggles with this for years. The PT swallow clinic and many exercises later helped. She also uses a humidifier next to her most of the time which makes her breathing easier. When the phlegm blocks her throat she tries to cough it out, or if she can’t she [...]

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Posted by charles, Oct 8, 2018

Thanks - good suggestions and wish you the best. Sounds like you are are great care giver
Best
C

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Mon, May 13 3:09pm · @beakmom · I found another lump-HPV strikes again

After finishing treatment for the squamous cell carcinoma on the left side of my neck, I have now discovered a new lump on the right side of my neck. Could this just be a reaction to the treatment? Or something? [...]

Posted by beakmom, Thu, May 9 5:16pm

It has been a year since my surgery. I've had ct scans every 3 months. Last one found 2 small nodes in my chin. Next scan in a month. But now they found I have endometrial cancer. Cancer #3. Don't have any specifics yet. I've been referred to an ob/gyn [...]

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Posted by esther2k5, Mon, May 13 3:08pm

So sorry to hear what you're going through. Sending you healing thoughts & energy.

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