Dealing with long term side effects

Posted by Cocobud @cocobud, May 10, 2016

Hi all, Is it just me or do we all keep suffering for years to come, I am 2 years 2 months and I am still having a difficult time with memory, getting things done, takes forever. Am I alone and how long does it go on?
Thanks

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Shalonda Michelle | @shalondam38 | Nov 26, 2017

I have a little over a year out n I suffer terribly with memory fog... I also learned that have to treat me as I develop Graves disease which increases trouble with memory fog

Annie1419 | @annie1419 | Nov 29, 2017

In reply to @cecbpafs "I'm 15 months post cancer treatment. It's good to know others are experiencing memory loss and..." + (show)

Cut VA loss. They have gave me no real good help. I'm 6 years out since last radiation and I have had so many side effects. I do have memory loss too didn't realize it was a side effect

Annie1419 | @annie1419 | Nov 29, 2017

In reply to @faith "I've attached 4 chemobrain related info sheets from CancerCare - patients here find them very useful..." + (show)

Could i please get those attachments also

KathyEvans | @kathyevans | Dec 13, 2017

In reply to @faith "I've attached 4 chemobrain related info sheets from CancerCare - patients here find them very useful..." + (show)

Faith, may I get those articles too. Katevans31@ Hotmail.com

Tom Heinmiller | @tom1947 | Dec 19, 2017

I'm right there with you - my first radiation treatments finished in december 2014. Remembering names is huge issue. But overall life is good. Tom

Karen | @karen1965 | Feb 7, 2018

In reply to @arodda "I'm almost 11 years out from treatment, 13 from Dx. I STILL have memory problems, numbness/tingling/shoot-holy-crap-pain..." + (show)

@arodda, i feel like the doctors think im crazy cause i keep telling them my neuropathy is worse and my mouth is always dry i have no salavia left at all and no energy and very bad memory i have alot of confusion im stressed out been 3 years out

jscprop | @jscprop | Feb 9, 2018

Faith. Could I get those info sheets too? Jscprop@hotmail.com

Tracymontanye | @tracymontanye | Feb 11, 2018

In reply to @arodda "I'm almost 11 years out from treatment, 13 from Dx. I STILL have memory problems, numbness/tingling/shoot-holy-crap-pain..." + (show)

They took all my teeth for radiation, and i still have pain like I have teeth in my mouth.I did not want them to take them but was told if they did not remove them before treatment my teeth would tot and cause problems after treatment.
I ended up lossi g lots of jaw bone and i still can\'t get dentures because 3yrs out I still get sores in my mouth.

Roseyfair | @roseyfair | Feb 11, 2018

It has been 3yrs.post radiation and going on two post chemo. Still weak and can\'t remember much. I am starting to get more short of breathe where cancer has metastized to both lungs. I am waiting on a clinical trial. Has any one had a trial that works.

StarWolf | @esther2k5 | Feb 11, 2018

Have you considered medical cannabis? At the very least, it will improve your quality of life. In MA where I live it\'s legal but you have to obtain a medical marijuana card through MD prescription:
https://mamarijuana.com/2473/massachusetts-medical-marijuana-news/marijuana-card-massachusetts/
Medical marijuana comes in a variety of forms so not necessary to smoke it.

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