Stage 4 cancer of the submaxiallary gland

I have salivary gland cancer stage 4. It has metastized to both lungs. I had my submaxiallary gland removed, a neck dissection and two more surgeries. I had 33 radiation treatments. My radiation doctor told me there was a 96 percent chances I would be cured. About 6 months later I had a pet scan and the cancer had spread to both lungs. I have multiple tumors in both lungs. I have went to two different cancer centers and they both said there was no cure. I had 8 chemo treatments and it stopped the tumors from growing for 4 months. I am waiting on a clinical trial now. Has anyone else had this kind of cancer?