Squamous cell carcinoma stage 3 sinus cancer
Hi, I was diagnosed with squamous cell carcinoma of the sinus cavity stage 3 November 7 2018, and also was told they found a brain aneurysm. Had massive heart attack on july 25th 2018 also. Had surgery to remove the left inside of face. Sinus cavity teeth, upper left pallet. Started radiation January 19 2019, last one February 20th 2019. The after affects for me have been the worst. Now I have trismus and it's very hard to eat. Have to do stretches and use the therabite if I want to eat. Still have a feeding tube, they wont take it out even know I haven't used it in awhile. I go to rehab therapy twice a week. I cant have aneyresum fixed till my mouth stays open incase they have to tube me. I work hard everyday with my mouth, but it seems within a hour I'm back to square one. You would think with the technology these days they could fix it. If anyone has any advice I sure would appreciate it. God bless you all.
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Hi,
I'm a stage lV squamous celll head & neck as well. I had the mandible surgery & radiation in 2017/2018. My symptoms got worse after radiation ended as well. The narrowing of my esophagus has caused eating issues so I understand a little about eating issues. This April I was diagnosed with esophageal T2 & tongue cancer(can't get a stage on the tongue because they can't operate.) Anyway, I begin immunotherapy for both tomorrow.
I hardly ever post but just read people's journeys mostly but I saw that you hadn't had a response yet & wanted you to feel welcome. You are amazing for what you have been through. I wish I could help but know you can always reach out & you are not alone.
Bug hug & lots of prayers!!
It would seem to me the physical therapy and range of motion exercises repeatedly would be the only real way forward - is this what they are doing? Do you feel like you are making any progress at all? Sometimes with radiation damage surgeons can find release point and remove scar tissue that is preventing the jaw from opening all the way. You are not alone and we are pulling for your progress
C