Hello gang, Hope you are all progressing well. My question: I am [...]

Hi Cocobud! Sometimes just reading through Cancer Connect entries some ring so true even though they are not related in any way to my own circumstances. Yours was one that hit me between the eyes. Just because I could relate to kinda coming to the end of the road and wondering if it ever gets better. And why am I not as cocksure as I was in the beginning. For one, I am still in treatment 2 plus years of chemo and counting. No radiation. Feeling better?? about what? Yes I am still alive and able to function at a certain level when most in my category haven't made it this far. What point do I actually 'feel better' - probably never. I also struggle every day and get a couple of productive hours a day - but sometimes not either!! My fatigue is also unbelievable. Wake up every day with dry mouth. Have forced myself to learn to sleep on my back slightly elevated which contributes to this fact I'm sure. Chemo brain is a real thing totally misunderstood by most of my friends. Memory is no better aggravated by the old age factor. Just hurried along by the addition of chemo brain!!! So after two years plus where am I - ALIVE - that's where. . My quality of life probably realistically isn't going to get any better. If I weren't so vain I could use my walker and do better about getting out but as for now I get very exhausted trying to grocery shop but won't use the motor scooters either!! It's a pride thing!! I still drive but have to be sure wherever I'm going I won't be upright too long!!! Thanks for giving me the opportunity to relate a little bit. I'm very grateful for a wonderful doctor who continues my fight to live right along with me. . I don't feel very ambitious every day and sometimes want to do nothing but lay around. I've determined that that's okay. I will never be the 'same' but I will be alive. My little family of 4 likes it that way and can still aggravate me more than ever!! They won't let me become disengaged from their decisions, problems, etc. My loving husband does more than he ever bargained for and without him I'd be in some kind of assisted living facility I'm sure. EGAD. Every thing I do is a huge project, including general housework, laundry, normal things. I've accepted that - I don't like it - I have no choice. Things are NEVER going to be the same for me. I keep a sense of humor about it but there are times in the middle of the night when I have to cry inconsolably - for no particular reason - just because the tears flow for what might have been - all good of course. But then I could get hit by a bus tomorrow!! Go figure. But before this gets too old, thanks for the opportunity to share because a lot of us are in that same twilight zone. We are lucky that medical science has allowed us to get this far. . And you should take it for what it's worth and run with it - not too fast. Things might never be back where they were. Someone has given you more life and we have to love it for all it's worth. My love, prayers and best wishes for you. You take it easy and go with the flow. Anne P

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Hi there Cocobud. Sorry to hear about all the problems you are having. Seems to go with the territory. The first year and a half seemed like hell at times. But I pushed forward. I am still on Chemo (Taxol/Carbo). I am told that the chemo will continue to be a part of my life. Continue to be positive,
drink plenty of fluids (lots of water) eat the best food you can (nothing processed), eat organic if possible, and set yourself a goal. I was told that my time was limited, Maybe two months. But I had my two year anniversary on June 3, 2015. My goal is to see my 9 year old grandson graduate high
school. I work all most evry day (need the insurance), found a nutritionist,
stay away from sugar, and I say a lot of prayers. My faith is strong, and I believe that I am to let others know about ovarian cancer. Ask a doctor or a
nutritionist about vitamins and something to help your memory. I was told that Turmeric could help with joint pain from the Chemo. No more joint pain.
As you know we have good days and rough days. Keep me informed. Wish
you all the best. Keep fighting. Lots of Love Jewel

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Hi there Cocobud. Sorry to hear about all the problems you are having. Seems to go with the territory. The first year and a half seemed like hell at times. But I pushed forward. I am still on Chemo (Taxol/Carbo). I am told that the chemo will continue to be a part of my life. Continue to be positive,
drink plenty of fluids (lots of water) eat the best food you can (nothing processed), eat organic if possible, and set yourself a goal. I was told that my time was limited, Maybe two months. But I had my two year anniversary on June 3, 2015. My goal is to see my 9 year old grandson graduate high
school. I work all most evry day (need the insurance), found a nutritionist,
stay away from sugar, and I say a lot of prayers. My faith is strong, and I believe that I am to let others know about ovarian cancer. Ask a doctor or a
nutritionist about vitamins and something to help your memory. I was told that Turmeric could help with joint pain from the Chemo. No more joint pain.
As you know we have good days and rough days. Keep me informed. Wish
you all the best. Keep fighting. Lots of Love Jewel

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