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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Jan 28, 2016 · @cocobud · Hello gang, Hope you are all progressing well. My question: I am [...]

Hello gang, Hope you are all progressing well. My question: I am 14 months out of treatment. I am single, I have no help, no one to help care for me. I had Head , neck and throat. chemo & Rad. At what point do you start feeling better? I [...]

Posted by cocobud, Thu, Jul 2, 2015 3:31pm

​Thanks for the reply, Yes I have ​been on the nutrition diet a few months
out. There are so many great foods and herbs for the healing. Thanks for
your words of encouragement.
I have actually started to feel better lately. I;m doing more and want
to do so much. Things are looking

[...]
Posted by hallettss, Mon, Jul 6, 2015 9:48pm

Jewel, Im so happy to hear that there is someone out there with stage 4 Uterine cancer that has been in remission 2 years. I pray everday that this will happen to me. Keep up the prayers. Sandy

[...]

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Jun 17, 2015 · @bwood · @caren Not certain how this works as this is my first post. [...]

@caren Not certain how this works as this is my first post. On 5-20-15 my husband, Steve, received a dx of head and neck cancer with mets to both lungs. He had his first session of chemo on 6-08 for palliative care. Seems that this will rob him of any [...]

Posted by megm, Wed, Jun 17, 2015 11:25am

Hi @bwood, have you talked to his doctors about concerns for quality of life? How are you doing with all this?

[...]
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Jun 11, 2015 · @cancerconnect · Research News: Keytruda® Promising in Advanced Head and Neck Cancer

The immunotherapy Keytruda® (pembrolizumab) appears active in the treatment of advanced squamous cell head and neck cancer. These findings were presented at 2015 Annual Meeting of the American Society of Clinical Oncology (May 29–June 2, Chicago, Illinois) and published in the Journal of Clinical Oncology. Read more: http://news.cancerconnect.com/keytruda-promising-in-advanced-head-and-neck-cancer/ [...]

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Oct 18, 2015 · @shyamal · I am 68 yes old Indian male. I am a survivor of [...]

I am 68 yes old Indian male. I am a survivor of vocal chord cancer. I use EL for speech. I would like to make friendship with other survivors. [...]

Posted by DisneyDreams, Sun, Oct 18, 2015 1:26pm

I currently am receiving treatments for vocal cord cancer. What treatment did you have and what was your staging if you don't mind me asking? I'm in the earliest stage and so far have just had surgeries. I have an appointment coming up to see if I'm a candidate for

[...]
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May 27, 2015 · @balausman · This is almost three since I had rediotherapy [...]

This is almost three since I had rediotherapy though no chemotherapy was applied all as a result of throat cancer.Presently I am better and no hoarse voice.  Sent from Samsung tablet [...]

Posted by mzsadie, Fri, May 15, 2015 5:52am

Glad to hear you are doing well. My husband had 33 radiation treatments plus surgery. He still is having along up hill climb. Swallowing is still difficult for him. He goes for his first check up next month. Good luck to you. May you have long life.
Kat

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Posted by balausman, Wed, May 27, 2015 11:48pm

Hi, I had no difficulties in swallowing and no hoarse voice it is bad breath and dry mouth with whitish saliva.

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May 11, 2015 · @balausman · I have diagnosed with throat cancer and had radiotherapy without chemotherapy now [...]

I have diagnosed with throat cancer and had radiotherapy without chemotherapy now three years back so I need some one to advice me. [...]

Posted by megm, Mon, May 11, 2015 10:56am

Hi @balausman, thought this overview might help: http://news.cancerconnect.com/throat-cancer/

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Jul 23, 2015 · @ponderit · Hello Everyone. I have been diagnosed with stage 4A Tonsillar Cancer (squamous [...]

Hello Everyone. I have been diagnosed with stage 4A Tonsillar Cancer (squamous cell carcinoma with basaloid features). I have a swollen lymph node with it. I asked both my radio oncologist and my ENT what basaloid features were and the both answered the same way. They dont know! I have [...]

Posted by cocobud, Thu, Jul 23, 2015 12:44pm

I do not like to see that much chemo? Your feeling pretty good right now you say. You do know how bad the after effects are? I hope you read life after cancer. On line if you have not seen it. NCA.com. When they kick in your going to get

[...]
Posted by ponderit, Thu, Jul 23, 2015 1:44pm

Hi Carol,

There has been a response in the lymph node. I really do trust my doctor I
think he is brilliant. He has said prior to this happening that another
patient he had was in the same situation and that after he finished
treatment it took several weeks for the node to go

[...]
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Apr 21, 2015 · @craigandme · GOOD MORNING FOLKS -- I JUST WANTED TO PUT THIS OUT THERE [...]

GOOD MORNING FOLKS -- I JUST WANTED TO PUT THIS OUT THERE -- I HAVE AN EXTRA CASE OF ENTERAL FEED GRAVITY BAGS IF ANYONE CAN USE THEM >> GIVE ME A CALL 716-825-3611. REGARDS 'MIL [...]

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Apr 16, 2015 · @juliecaroline · Throat operation recovery

Throat operation recovery Megm. Thanks for asking how I'm doing. Had very painful neck for the last 3 weeks and have been taking lots of different prescribed painkillers. Haven't been able to get much sleep for that duration. Have been sick after food with increasing regularity due to coughing bouts , [...]

Posted by megm, Thu, Apr 16, 2015 9:39am

Thanks for the update @juliecaroline, have been thinking about you!

[...]
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Apr 16, 2015 · @luisa · Tomorrow, April 14, 2015, 12 p.m., EDT Live Twitter Chat: Head and [...]

Tomorrow, April 14, 2015, 12 p.m., EDT Live Twitter Chat: Head and Neck Cancers Presented by Dana-Farber Cancer Institute and the American Thyroid Association Nicole Chau, MD, medical oncologist at the Head and Neck Cancer Treatment Center of Dana-Farber/Brigham and Women’s Cancer Center will be answering questions on Twitter [...]

Posted by luisa, Thu, Apr 16, 2015 2:10pm

The transcript for Tuesday's Twitter chat on Head and Neck Cancers is now available online at http://bit.ly/1czGc18 . Thanks to all who participated; thanks to the American Thyroid Association for co-hosting; and thanks to the NCI for joining in.

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Apr 14, 2015 · @sheiladab · Hi, I am a spouse of a husband with late stage residual [...]

Hi, I am a spouse of a husband with late stage residual throat cancer. I am looking for help in options. [...]

Posted by megm, Tue, Apr 14, 2015 12:26pm

HI @sheiladab, just checking in to see how you are doing. Is your husband in treatment?

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May 18, 2015 · @mzsadie · Hi just wanted to let every one that my husband that is [...]

Hi just wanted to let every one that my husband that is dealing with throat cancer takes his last radiation treatment today. Happy but worried he has alot of nausea. He has meds for it but don't seem to help. Zofran, drug of choice but didn't help him so they [...]

Posted by mzsadie, Wed, Apr 15, 2015 11:24am

Thanks to all the Zofran seems to be working. The doctor ordered him to have fluids for a few time also to get him over the hump. He is starting to feel better. But very forgetful at times. Hope this also improves but if it does its ok. He still

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Posted by mzsadie, Mon, May 18, 2015 9:07pm

Neasua is gone. Neck is no longer peeling like a burn pt. Got a sinus infection. But made it through that. Now we are again in thecwaiting game. We finally good a phone call from an Nurse Practitioner. For his followvup on his cancer surgery ? ? Dont get me

[...]
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Apr 30, 2015 · @susanoneal · I begin radiation therapy on Tuesday.  Tonsil cancer, [...]

I begin radiation therapy on Tuesday.  Tonsil cancer, stage two, no nodes, no mets.  I am anxious, pissed and grateful for the stage.  I just wish this wasn't happening. I just had a new grandson and another here in May.  Cancer is evil and more needs to be done to [...]

Posted by susanoneal, Thu, Apr 30, 2015 8:34pm

Good luck with all of your scans and trestments. I am just seeing this thread. I am sure by now you know more?

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Posted by susanoneal, Thu, Apr 30, 2015 8:35pm

Yes, i do have a great support system.

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Apr 8, 2015 · @colleend · My mom is half way through radiation tx for oral cancer and [...]

My mom is half way through radiation tx for oral cancer and is extremely tired is this normal? She is 82 years old. [...]

Posted by joannamorrison, Wed, Apr 8, 2015 12:10pm

Hi @colleend, I'm one of the moderators here and I've messaged the other members of the the head and neck cancer group to see if anyone can share their experience with you. In the mean time, you might find these links on side effects of radiation and managing fatigue to

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Posted by charlesdekranis1, Wed, Apr 8, 2015 12:19pm

82. God bless her. Radiation for head and neck is one of the roughest there is. i was 58 when i went through it and barely made it.
i am back with stage 4 bone cancer to which there is little hope. pray for mom that her cancer does not

[...]
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Apr 14, 2015 · @juliecaroline · Throat operation recovery

Throat operation recovery Possum. Thank you for your tips. Definitely going to try mucinex. [...]

Posted by megm, Tue, Apr 14, 2015 12:36pm

Hi @juliecaroline, how are you doing? just checking in.

[...]
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