Please login with your account or, if you aren't a member, join now.

 

Login


Join Now

The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Jun 1, 2016 · @jscprop · Treatment Decision Making Stage IV Tonsillar Cancer

I was just diagnosed with localized stage 4 tonsillar cancer and need to talk about surgical vs non surgical options.

[...]

Please login or register to post a reply.

May 25, 2016 · @shubarna · Metastatic head and neck cancer-- need hope

Hi, my husband's yearly pet scan showed metastatic head and neck squamous cell carcinoma with recurrence in the mediastinal nodes post laryngectomy and bilateral neck dissection following one year of treatment. Primary site all clear. Liver, pancreas, brain, bone, all clear. Doctor suggests weekly systemic chemotherapy with carboplatin, paclitaxel and

[...]

Please login or register to post a reply.

May 26, 2016 · @cocobud · I can not be alone. My pals will help me out.

Hi Guys & Gals.....Not new.....I am 2 years out. 2 year screening was good, except they want to do the scans again in 3 months.?? Is it normal to feel like the chemo takes over , you have no control?? I have had better days where I felt I was [...]

Posted by @weagle, Apr 27, 2016

Hi:

I am leaving the “smoldering” phase and have anemia (red blood cell counts at 2.6 or sometimes lower). Sometimes over the counter iron helps..>I’m going to an “integrated” doctor who’s also giving me 30 mgs of “iron chelate” (Prothera).

Just wondering how you deal with anemia. I agree with you – […]

Please login or register to post a reply.

Apr 11, 2016 · @luisa · "How to Reduce Your Risk of Oral Cancer" New Dana-Farber Blog Post [...]

"How to Reduce Your Risk of Oral Cancer" New Dana-Farber Blog Post The post begins, "Each year, more than 48,000 people in the United States are diagnosed with oral or oropharyngeal cancer, which occurs in the oral cavity – lips and cheeks, gums, tongue, floor or roof of [...]

Please login or register to post a reply.

Apr 5, 2016 · @cocobud · Long term side effects

Hi Guys & Gals, OK, I am two years out, all clear. I have yet to find a Head & neck, throat survivors who have ever had your side effects from Chemo & radiation. This rarely improves. I know Head , neck & throat like most of you. People after

[...]

Please login or register to post a reply.

Mar 17, 2016 · @noslippers · My dad has Cis of the vocal cord and had the tumor [...]

My dad has Cis of the vocal cord and had the tumor removed and then started on radiation therapy. He was halfway through RT when he started having very bad side effects.He has severe sore throat, inability to swallow properly, pneumonia, sepsis and had to have a peg tube. Dr. [...]

Please login or register to post a reply.

Feb 11, 2016 · @danielletc · My father a veteran of 22 years just got diagnosed with stage [...]

My father a veteran of 22 years just got diagnosed with stage 4 throat cancer. Today the biopsy confirmed it. We live in the Houston area. My mother and I are doing everything we can to support him. His medical coverage wont cover MD Anderson any longer. I just feel [...]

Please login or register to post a reply.

Feb 6, 2016 · @tom1947 · I have stage 4 head neck, would like to know what others [...]

I have stage 4 head neck, would like to know what others are finding most effective for a good nights sleep. It's 3:36 am and I'm up at the computer unable to sleep again. [...]

Posted by @giedre, Feb 5, 2016

That’s terrible Tom. Around 3am seems to be the worst time for being awake. Sometimes I take 5mg of Valium before bed and it helps but I don’t want to get addicted to it. My biggest problem is a panic attack at around 3am but I try to pray to […]

Please login or register to post a reply.

Jan 26, 2016 · @ponderit · Head and Neck

Head and Neck I was first diagnosed with tonsil cancer in April of 2015. I was given an NED in August of 2015. The comes new years and Im getting sick, pain in the throat , teeth and ears. I was freaked. I was on vacation to see my mom In NYC as she [...]

Please login or register to post a reply.

Mar 30, 2016 · @eddie217 · Looking for head and neck cancer groups in Ohio

I am a is there any head and neck groups in Columbus Ohio if there is any how do I join

[...]

Please login or register to post a reply.

Mar 29, 2016 · @caregiverforart · Waiting for scan results

My husband has been diagnosed with throat cancer. It is advanced. He has already had radiation and chemo. It will take surgery to help him. We are waiting on PetScan to find out if it has spread. Please give me some encouraging news. I am so afraid.

[...]

Please login or register to post a reply.

Mar 29, 2016 · @fourlaffs · Throat cancer: chemo, radiation, surgery. Stroke and blood clot

I had throat cancer twice, Dec 2013 and Dec 2014. First treatment plan was chemo x 5 and radiation x 35. Second treatment was a radical neck dissection. On Dec 23 2015 I had a stroke. I'm baffled by this. I'm healthy, weight is 133 LBS, eat clean, workout daily

[...]

Please login or register to post a reply.

Mar 29, 2016 · @AnneHawkins · Mandible replacement for ORN

Diagnosed 2009 Chemo and radio. Had mandible replacement 2014 for ORN. Awaiting further surgery for removed of titanium plate

[...]

Please login or register to post a reply.

Jan 19, 2016 · @balausman · I really need a support group, I was [...]

I really need a support group, I was diagnosed of head and neck and had radiotheraphy as treatment. Sent from Samsung tablet [...]

Please login or register to post a reply.

Oct 20, 2015 · @ColleenWilliamson · I am joining this site for help in regards to supporting a [...]

I am joining this site for help in regards to supporting a loved one battling stage 0 displasia of the larynyx..my dear friend was told by her recent EX & sworn to secrecy. I can appreciate ones wish for privacy but is a huge burden for her to carry & [...]

Please login or register to post a reply.