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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Sep 10, 2016 · @cancerconnect · FDA News: Keytruda® Approved for Advanced Head and Neck Cancer

The United States Food and Drug Administration (FDA) has approved Keytruda® (pembrolizumab) for the treatment of advanced head and neck cancer that has stopped responding to platinum-based chemotherapy agents. Read more here: http://news.cancerconnect.com/keytruda-approved-advanced-head-neck-cancer/ [...]

Posted by ponderit, Sat, Sep 10, 2016 1:27pm

I had read that but it not walk in the park. The side effects seem worse than chemo. OS is a few months longer than docetaxel.

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Sep 6, 2016 · @noella12 · My fiance is a Recovering Alcoholic (sober for 6 1/2 months now). [...]

My fiance is a Recovering Alcoholic (sober for 6 1/2 months now). He has been a drinker and smoker since he was 13 years old (now 54). He has been seeing a VA dentist that has been cleaning and pulling teeth etc. He noticed a spot at the point where [...]

Posted by noella12, Thu, Sep 1, 2016 4:41am

What have you done so far and what are your plans for the Base Tounge Cancer? is there a special name for it??

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Posted by noella12, Tue, Sep 6, 2016 6:08am

Ok - Biopsy said NOT CANCER but...just a weird CALLOUS! on and in gum. So...they pulled two more teeth! Fun? Wow. He's taking it well though...only two more pulling to go (out of 6 teeth). Thank you all for your concern!

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Sep 13, 2016 · @man4god · Throat cancer with mets to the lungs - options?

October 2014 I was diagnosed with Stage 4 Squamos Cell Throat Cancer. I was HPV+ and had multiple lymph nodes involved on both sides of my neck. I had 35 radiation treatments finishing Feb. 1, 2015. Fast forward a year, since Feb. of this year I have periodically been coughing [...]

Posted by man4god, Tue, Sep 13, 2016 1:31pm

@megm
Since my last post, I have had the invasive bronchoscopy on September 1. During that, the doctors did not find the source of bleeding in my lungs. They took multiple biopsies from both lungs and sent everything for pathology and a lot of other testing. In short, nothing was

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Posted by megm, Tue, Sep 13, 2016 2:20pm

Sounds like you have been through a lot over the last couple of weeks! Sorry you are having to deal with all of this.

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Aug 19, 2016 · @luisa · DFCI: Signs and Symptoms of Throat Cancer

"What Are the Signs and Symptoms of Throat Cancer?" New Blog Post from Dana-Farber

This blog story describes the various signs and symptoms of throat cancer -- including cancer of the larynx, the nasopharynx, and the oropharynx. The post begins,

"Throat cancer is a type of head and neck cancer that may

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Sep 19, 2016 · @olwen · My partner Fred (69) and I live near Blenheim, New Zealand. Blenheim [...]

My partner Fred (69) and I live near Blenheim, New Zealand. Blenheim has a small hospital (Wairau) and is served by the Nelson Marlborough District Health Board (NMDHB). NMDHB has a larger hospital in Nelson which is a little over 100km from Blenheim. Fred also has COPD. Fred had [...]

Posted by olwen, Tue, Aug 16, 2016 12:58pm

We had a talk to the oncologist, and saw the scans. There are a number of nodes on the left side of Fred's neck, and a number in his lungs, but all small biggest are abou 1cm. They are recent, as in the past few months. Fred has no symptoms

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Posted by bikerbarbi, Mon, Sep 19, 2016 6:27pm

First I want to say im sorry you are having this issue with Drs. As patients we must demand answers bc in my opinion, we become a number and some Drs you must command attn and answers. That is what they are working for, right? Please dont assume anything and

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Apr 25, 2018 · @yensid · New diagnosis of Vocal Cord Cancer

I have just been diagnosed with cancer of the vocal cord (it hurts to admit that!). My PCP says the report indicates that it is in situ and I should respond well to treatment. I've had a consult with radiation oncology. It seems there's 5 1/2 weeks of radiation ahead.

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Posted by yensid, Sun, Oct 30, 2016 5:42pm

Thank you so much.

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Posted by pauline1964, Wed, Apr 25, 2018 3:34am

Hi just seen ur post and had laser for the same thing but they insisted I had six weeks radiotherapy after wish I didn’t have it
finished it in March
And still do not understand why
Now I read ur post looks like maybe they did not need to do

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Aug 6, 2016 · @shkalley · Treatment decision making-- chemoradiation or no treatment

My husband was diagnosed with oropharynx cancer - Stage 4, T3 N2c M0 - and had successful surgery at the end of June. He's now trying to decide about doing chemoradiation or no treatment. The doctors recommended the chemoradiation because his lymph nodes were involved with extranodal extension and although

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Posted by megm, Mon, Aug 1, 2016 2:03pm

Hi @shkalley, did your husband decide to proceed with chemoradiation or no treatment?

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Posted by shkalley, Sat, Aug 6, 2016 7:17am

Thanks for your interest. He has decided to proceed with chemoradiation. It will begin Monday 8/8. It seems as if everyone responds differently to the treatments. I'm just trying to be ready to help with whatever side effects he has. He is doing great right now - driving, mowing, socializing.

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Sep 1, 2016 · @murielk88 · Nasal pharyngeal cancer-- severe headaches and earaches

Hi I am Muriel I found out 3 months ago that I had a nasal pharyngeal tumor , dealing with severe headaches and earaches for a long time before finding out. I wonder if anyone could guide me on the recovery, i had 33 radiation sessions and two chimos already...Three

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Posted by murielk88, Thu, Jul 7, 2016 8:53pm

I do juicing with greens in the morning and lots of natural vitamins and supplement, what did you have cocobud?

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Posted by vphillips, Thu, Sep 1, 2016 7:20am

Hi Muriel! I am a 6 1/2 year naso-pharynx cancer. The treatments for our type of cancer is harsh. I had 34 radiation treatments (radiation treatments will make you very tired, but that will go away in time), 3 out patient chemo treatments, and then got so terrible sick, they

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Jun 8, 2016 · @luisa · What Is the Best Diet for Someone with Oral Cancer? DFCI Blog

New Dana-Farber Blog Post: "What Is the Best Diet for Someone with Oral Cancer?"

The story begins,

"Side effects from oral cancer and its treatment can make it challenging to eat essential nutrients that can maintain strength and support recovery. Stacy Kennedy, MPH, RD, CSO, a senior nutritionist at Dana-Farber/Brigham and Women’s

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May 26, 2016 · @fran356 · Immunotherapy and head and neck cancer

New here-- my husband has squamous carcinoma, have been reading some about immunotherapies for his type of cancer. anyone had opdevo or kaytruda? [...]

Posted by p38chasmo, Thu, May 26, 2016 4:58am

I was diagnosed with metastatic malignamt melanoma to liver. One large tumor in left lobe that was killed with chemoembolization treatment. Several small lesions in right lobe now being treated with keytruda. So far very minor side effects. Promising therapy. Being treated at Thomas Jefferson hospital in Phila, great Doctors

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Posted by ReesieOK, Thu, May 26, 2016 8:31am

I am receiving Keytruda for melanoma with spread to lymph nodes and liver. Unfortunately, my insurance required a failure of ipi and a BRAF drug before I could have Keytruda so it's been a long road. I've had some fatigue and joint pain related to Keytruda and it can be

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Oct 23, 2018 · @cocobud · Dealing with long term side effects

Hi all, Is it just me or do we all keep suffering for years to come, I am 2 years 2 months and I am still having a difficult time with memory, getting things done, takes forever. Am I alone and how long does it go on? Thanks

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Posted by mmnorris, Mon, Oct 22, 2018 9:52pm

I had two times of NED, but have been constantly fighting since November 2016

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Posted by charles, Tue, Oct 23, 2018 5:51am

Thanks

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May 17, 2016 · @user_chd2ee883 · Voice

Voice i was diagnosed with laryngeal cancer on June 8,2015. I did 7 weeks of radiation and 3 chemo treatments. My doctors say I am doing great. My voice is still a little scratchy and hoarse. Can I expect it to get better? My thyroid was affected by the radiation. I [...]

Posted by charles, Tue, May 17, 2016 9:26am

It really depends on how much damage the radiation did. In my experience there is usually some inflammation that occurs with the radiation and this should continue to improve over time. What have your doctors said?
Best
C

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Jun 1, 2016 · @jscprop · Treatment Decision Making Stage IV Tonsillar Cancer

I was just diagnosed with localized stage 4 tonsillar cancer and need to talk about surgical vs non surgical options.

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Posted by ponderit, Tue, May 31, 2016 1:39pm

Yes I had 7 weekly Cisplatin and around 37 rounds of radiation. Consider yourself lucky that you are HPV+ as well because there is a higher cure rate. As I said I was stage 4A and had two local lymph nodes. I was not in a major cancer research university,

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Posted by jscprop, Wed, Jun 1, 2016 6:48am

Thank you for your encouraging response. My Cisplatin is scheduled for once every 3 weeks rather than weekly. Will need to ask chemo doc about differing intervals.

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May 25, 2016 · @shubarna · Metastatic head and neck cancer-- need hope

Hi, my husband's yearly pet scan showed metastatic head and neck squamous cell carcinoma with recurrence in the mediastinal nodes post laryngectomy and bilateral neck dissection following one year of treatment. Primary site all clear. Liver, pancreas, brain, bone, all clear. Doctor suggests weekly systemic chemotherapy with carboplatin, paclitaxel and

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Posted by shubarna, Mon, May 9, 2016 9:21pm

Thank you so much for your reply. Yes, he did have cisplatin based chemo
along with his radiation but that was a very low dose just to enhance the
effect of radiation, what they term as adjuvant chemo-radiation for six
weeks.
This metastasis occurred one year post treatment. He has

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Posted by charles, Wed, May 25, 2016 10:54am

Lots of new treatments becoming available soon that are improving survival and quality of life; http://news.cancerconnect.com/opdivo-improves-survival-head-neck-cancer/
C

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May 26, 2016 · @cocobud · I can not be alone. My pals will help me out.

Hi Guys & Gals.....Not new.....I am 2 years out. 2 year screening was good, except they want to do the scans again in 3 months.?? Is it normal to feel like the chemo takes over , you have no control?? I have had better days where I felt I was [...]

Posted by weagle, Thu, May 26, 2016 10:26am

The multiple myeloma doc thinks the anemia is more a result of the inflammatory illness than the myeloma. I do take a ton of supplements (I go to an integrated doctor as well)..and they include B-12, Vit D and also iron chelate). Sometimes, I take an electrolyte drink...blood tests show

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Posted by faith, Thu, May 26, 2016 11:37am

Hi Bill, Interesting thing about B12 deficiency. A close relative of mine - very healthy his whole life - started having severe neurological problems, which got so bad he could barely walk or stand. Primary doc was at a loss (suspected a brain tumor) so sent him to a neurologist

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