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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Mar 17, 2017 · @dmcfayden · On Hospice Care for Throat Cancer- What to Expect?

84 yr old mother diagnosed Sept 2016 with throat cancer. She does not want treatment and is on hospice care. I am concerned she will choke to death but Dr said it will most likely invade her cerotic artery first. Has anyone dealt with this type of cancer? would like

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Posted by dmcfayden, Fri, Mar 17, 2017 5:20pm

Just want to thank those who replied to my post. My mother passed late Sunday night. They finally started giving her morphine in the last week which helped calm her breathing. By the end it looked liked the tumor had pretty much closed off her throat. She wasn't able to

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Posted by carolcowan, Fri, Mar 17, 2017 6:43pm

Donna,
I'm glad your mother's death was peaceful, I know that was a big concern of yours. If your mother was designated as a hospice patient by Medicare, the AL received an amount of money per day from the time she started on the program. They then pay all of

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Dec 28, 2016 · @ivolkweis · Experience with SINUS SQUAMOUS CELL CARCINOMA

Is anyone familiar with SINUS SQUAMOUS CELL CARCINOMA? TKS

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Posted by tess1012, Tue, Dec 27, 2016 1:13pm

Did the tumor shrink ?? And still not operable??

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Posted by ivolkweis, Wed, Dec 28, 2016 10:28am

No It didn't., actually, its growing slowly. He will go back to abdivo, the doctor want to do some more Kimo therapy, he doesn't, too much side effect. He had ITILIMUMAD, MGA 271, ABDIVO... you named. Thank you!

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Jan 1, 2017 · @wojahns · Anybody tried Yervoy with Opdivo?

Anybody tried Yervoy with Opdivo?? I'm considering it, but Yervoy has mean side-effect possibilities. I had no side effects from Opdivo for HNSSC. Thanks.

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Posted by megm, Tue, Dec 27, 2016 8:48am

Hi @wojahns, just checking in to see if you ended up do the combination of Yervoy and Opdivo?

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Posted by wojahns, Sun, Jan 1, 2017 9:12pm

Hi!
We delayed because currently capecetamine seems to be working with little ill effects other than tiredness which seems much better than risking the Opdivo/Yervoy combined potential side effects. Well keep you informed, thanks.
I am also approved for patient assistance if I have to use them but not a

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Oct 17, 2016 · @megm · Research News: Particular HPV Strain Linked to Improved Prognosis

In an analysis of survival data for patients with a particular type of head and neck cancer, researchers from the University of North Carolina Lineberger Comprehensive Cancer Center confirmed findings that a particular strain of HPV, a virus linked to a number of cancers, resulted in better overall survival for [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about stress and cancer recurrence

Question: Does excessive amounts of stress increase the change of my cancer returning? And is there a time frame after cancer occurrence that I no longer need be concerned about return of cancer? 3 yrs? 5 yrs? Response: This is a very interesting question! I think most physicians would [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about neck cramps after radiation

Question: From time to time, I have cramps from my radiation to the side of my neck. How would I go about treating these muscle contractions? Response: I would discuss this with your radiation oncologist. It is possible that physical therapy may be helpful in your case. Dr. [...]

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Mar 21, 2017 · @guestmoderatordrkang · Ask the Expert: Question about mouth side effects

Question: I am 2 1/2 years out from having stage III tongue cancer. I still have a very dry mouth, very sticky & gooey saliva. In addition, most of the time I feel like there's a film on my teeth, even right after I brush. Is there anything to help [...]

Posted by whitecobra, Tue, Mar 21, 2017 6:38pm

It depends on where the cancer is located
If the cancer is in the head and neck and radiation was used to treat it then the mouth has lost much of its defense system to fight off decay and gum disease
That is why so much time is spent teaching H&N patients

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Posted by carolcowan, Tue, Mar 21, 2017 8:04pm

Here's a link to a legal discussion about cases where Medicare paid for dental work that was required after cancer treatment, including radiation. These cases were in Maine.
In 1965, when Medicare was begun certain kinds of medical needs were not covered because they were deemed to be not

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Oct 30, 2016 · @guestmoderatordrkang · Ask the Expert: Question about dry mouth after radiation

Question: Does radiation treatment for vocal chord cancer cause or intensify dry mouth? Response: Yes. Radiation treatment, while required to treat cancer, also results in dry mouth, known as xerostomia, as a result of treatment. Dr. Kang is an Assistant Professor in the Department of Otolaryngology – Head [...]

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Feb 15, 2017 · @guestmoderatordrkang · Ask the Expert: Question about precision medicine

Question: Are there any advances in the treatment of neck cancers that use precision medicines? Response: Yes. Advances in the treatment of head and neck cancer are occurring by identifying novel targets, exploring mechanisms of tumor resistance to current therapy, and identifying effective combinations of treatments, whether chemotherapeutic or [...]

Posted by charles, Wed, Feb 15, 2017 11:12pm

What has your experience with the PD-1 drugs keytruda and opdivo been?

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about side effects of radiation

Question: Is there anything I can do to reduce the mouth sores I am getting from radiation? Response: This is a known side effect of radiation that you should discuss with your radiation oncologist. Dr. Kang is an Assistant Professor in the Department of Otolaryngology – Head & [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about voice changes after radiation

Question: I just completed radiation therapy for throat cancer; my voice has changed; will it return to normal? Response: This is very common after radiation treatment for throat cancer. How the voice responds, depends on the location of the tumor, and the amount of treatment delivered to the larynx. [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about radiation therapy

Question: It seems like there are different types of machines for delivering radiation therapy for my pharyngeal cancer; how do I know which method of radiation delivery is best? Response: You are correct – for most pharynx cancers, IMRT, or intensity modulated radiation therapy, is the technique employed, which [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about Treatment and HPV Status

Question: If my cancer is HPV positive, does that change my treatment? Response: Great question, this is a hot area of research. HPV status has tremendous prognostic potential. Currently there are many studies looking at deintensifying treatment for HPV positive oropharynx cancer. There are many national and institutional clinical [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about HPV Status

Question: Does HPV status affect treatment and when should I be tested for HPV (I have throat cancer)? Response: HPV testing is typically done during the initial pathologic evaluation of your tumor. It can be performed on the primary tumor site or in the lymph nodes. One of the [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about Surgical Techniques

Question: Are there surgical techniques to reduce or minimize the effects on speech, and/or ability to chew and swallow? Response: Absolutely! Head and neck reconstructive microsurgery has advanced tremendously in the past decade. Our ability to transplant tissue from other parts of the body to reconstruct head and neck defects [...]

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