Please login with your account or, if you aren't a member, join now.

 

Login


Join Now

The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about radiation therapy

Question: It seems like there are different types of machines for delivering radiation therapy for my pharyngeal cancer; how do I know which method of radiation delivery is best? Response: You are correct – for most pharynx cancers, IMRT, or intensity modulated radiation therapy, is the technique employed, which [...]

Please login or register to post a reply.

Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about Treatment and HPV Status

Question: If my cancer is HPV positive, does that change my treatment? Response: Great question, this is a hot area of research. HPV status has tremendous prognostic potential. Currently there are many studies looking at deintensifying treatment for HPV positive oropharynx cancer. There are many national and institutional clinical [...]

Please login or register to post a reply.

Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about HPV Status

Question: Does HPV status affect treatment and when should I be tested for HPV (I have throat cancer)? Response: HPV testing is typically done during the initial pathologic evaluation of your tumor. It can be performed on the primary tumor site or in the lymph nodes. One of the [...]

Please login or register to post a reply.

Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about Surgical Techniques

Question: Are there surgical techniques to reduce or minimize the effects on speech, and/or ability to chew and swallow? Response: Absolutely! Head and neck reconstructive microsurgery has advanced tremendously in the past decade. Our ability to transplant tissue from other parts of the body to reconstruct head and neck defects [...]

Please login or register to post a reply.

Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about immunotherapy

Question: Has immunotherapy improved outcomes in head and neck cancer? What’s on the horizon with clinical trials? Response: It has, particularly in the recurrent and metastatic setting. This article from AACR sums the latest findings in head and neck cancer: http://www.aacr.org/Newsroom/Pages/News-Release-Detail.aspx?ItemID=882#.WAAVuDspo9s Dr. Kang is an Assistant Professor in [...]

Please login or register to post a reply.

Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about Selecting a Surgeon

Question: Do you have any tips on how to select the best surgeon? Response: Selecting a surgeon is very important. With regard to cancer care, I always recommend evaluation and treatment at a NCI (National Cancer Institute) designated cancer center. These are typically high volume centers that are specialized [...]

Please login or register to post a reply.

Sep 27, 2016 · @shivaram · I have been suffering for throat cancer

I have been suffering for throat cancer [...]

Please login or register to post a reply.

Sep 27, 2016 · @msconnie · How can I get lymphedema sleeves?

How can I get lymphedema sleeves? Insurance will not cover and I have very limited funds

[...]

Please login or register to post a reply.

Sep 16, 2016 · @alisa4 · My husband passed away in November 2005 at the age of 34 [...]

My husband passed away in November 2005 at the age of 34 from squamous cell carcinoma, he had tongue cancer. What annoyed me more than anything is that his dentist excused a tumor (it looked like an ulcer) on his tongue, not one time but twice. We then heard from [...]

Posted by @pati, Sep 15, 2016

I am sorry you lost him but you know h loved you and thats a blessing and I am tired of the surgery and all the other things too..I want to go peacefully .And by my way;At 67 I did a lot growing up maybe to much .People say I […]

Please login or register to post a reply.

Jan 31, 2017 · @cancerconnect · Have a Question about Head and Neck Cancer? Ask the Expert!

CancerConnect in collaboration with The Ohio State University Comprehensive Cancer Center – James Cancer Hospital and Solove Research Institute (OSUCCC – James) to provide you with the opportunity to engage with a head and neck cancer expert, Stephen Y. Kang, MD. On October 14th, 2016, Dr. Kang will answer your [...]

Please login or register to post a reply.

Sep 29, 2016 · @fighter13 · Waiting for scan results

Went for another Mri scan today but will probably have to wait till Tuesday for results. It's gonna be a very long weekend for me!

[...]

Posted by @megm, Sep 6, 2016

Hi @figher13, keep us posted! […]

Please login or register to post a reply.

Sep 19, 2016 · @voodude · Living with Stage IV HNC Cancer

Diagnosed Sept 2015, (H&NC stageIV,) Surgery October '15, then Rads and Chemo. G-tube, (esophageal-stricture,) removed in May '16. Still have daily pain, nausea, dysphagia, and some memory problems. I'm glad that I went through all of it, because I lived to hold my newborn granddaughter. I'm starting notice neck masses,

[...]

Please login or register to post a reply.

Sep 19, 2016 · @fighter13 · Hello I'm Lori I was diagnosed with basil cell carcinoma in 2003 [...]

Hello I'm Lori I was diagnosed with basil cell carcinoma in 2003 the first surgeon I went to just did plastic surgery I thought it was infected due to my cat scratching my nose so after the first surgery I could stick my finger into the side of my nastral [...]

Posted by @grammym, Sep 10, 2016

Sorry about the cancer spreading but I am energized you won’t give in. Thanks for that – it’s like a PEP talk. Marilyn […]

Please login or register to post a reply.

Sep 10, 2016 · @cancerconnect · FDA News: Keytruda® Approved for Advanced Head and Neck Cancer

The United States Food and Drug Administration (FDA) has approved Keytruda® (pembrolizumab) for the treatment of advanced head and neck cancer that has stopped responding to platinum-based chemotherapy agents. Read more here: http://news.cancerconnect.com/keytruda-approved-advanced-head-neck-cancer/ [...]

Please login or register to post a reply.

Sep 6, 2016 · @noella12 · My fiance is a Recovering Alcoholic (sober for 6 1/2 months now). [...]

My fiance is a Recovering Alcoholic (sober for 6 1/2 months now). He has been a drinker and smoker since he was 13 years old (now 54). He has been seeing a VA dentist that has been cleaning and pulling teeth etc. He noticed a spot at the point where [...]

Posted by @windyhollow, Aug 24, 2016

I don’t have any info to offer but Iwish you both the best as you wait for his test results and treatment recommendations. You can do this, take care and best wishes! Keep us posted […]

Please login or register to post a reply.