The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.
Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.
I had 8 weeks of Herbitux chemo and 7 weeks of radiation treatments for my tonsil cancer. Treatments ended 11 weeks ago (May 17th). My throat is very swollen and that along with the pain in my mouth, makes eating very difficult. My chemo and radiation doctors expected me to [...]
Aug 12, 2017 · @oanhbui · Educational material for teen about head and neck cancer
Hello all I am interested in knowing if any of you have have any simple educational materials to have teen understand what heand and neck cancer is, how removal of the tumor can change the facial formality, how to help other body part that were taken out to cover the [...]
I am hoping to get more ideas of how to best prepare for my brother-in-law and my sister for post surgery care. He will have to go through a 15 hour surgery to remove the tumor and to restructure his jaw. Wonder if anyone here has experience with this kind [...]
Hello there, My name is Oanh Bui and I am writing to ask if you are aware of any resources to support my brother-in-law who just got the diagnosis of squamus cell carcinoma cancer stage 4A. He lives in GA and will receive a surgery to remove tumor on 7/21, [...]
Have recent been diagnosed with stage 4 metastatic tonsil cancer that has spread bilaterally to the lymph nodes. A pet scan revealed a lesion on my sternum, so radiation was ruled out. I have had consultations with two medical oncologists, both of whom agree that immunotherapy, in particular Keytruda, may [...]
As the subject says I am looking for some supplements and vitamins where there have been case studies AHCC mushroom powder mix 1.5-3 grams you can get 750 mg per capsule so you take either 2 or 4. , Beta Glucan at least 1000mg and broccoli sprouts 1000-2000 mg. I [...]
Hi everyone. My husband is scheduled to have his larynx remove June 1. He would love to talk to someone who has gone through this operation to know what is in store for him. He is having a terrible time swallowing and has lost a lot of weight. Does anyone [...]
I've seen where people are referring to head and neck cancers. what are the specific types? My husband who just turned 52, was diagnosed with a sinonasal adenocarcinoma. We live in Chicago but he had it surgically removed at UPMC Presbytarian, unfortunately had to go back for another surgery a [...]
I am larynx cancer survivor. I have completed 4 yrs cancer free journey on 16th April 2017. My treatment was total laryngectomy followed by 30 rt. After surgery I'm suffering from neck tightness which gradually increases. Now it become very difficult to keep my head straight particularly in the evening. [...]
Apr 26, 2017 · @ozark · I'm new here. Hope I can find my way back! My husband [...]
I'm new here. Hope I can find my way back! My husband was diagnosed at Roswell last week for cancer of the larynx. He had cancer of the tonsils before but this new cancer is considered a primary and not a spread from the previous. He has had radiation before [...]
May 16, 2017 · @luisa · What's New in Immunotherapy for Head and Neck Cancer?
"What's New in Immunotherapy for Head and Neck Cancer?" New Blog Post from Dana-Farber Cancer Institute The blog post begins, "For patients with advanced head and neck cancers, immune-based therapies have started to show results against these hard-to-treat tumors. Two immunotherapy drugs were approved in 2016 for use [...]