The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.
Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.
My husband’s battle with SCC throat cancer started 1yr ago, when in 6wks he lost 30 lbs, had emergency hospital admission to secure PEG feeding tube and hemp port once his throat cancer was dx. We followed “standard routine treatment” of 7-wks daily radiation with a 1X weekly cisplatin IV [...]
Today is radiation treatment number 8 for squamous cell carcinoma of the left tonsil. On Wednesday, I have cetuximab infusion number 3. Side effects include: Red, itchy rash around my mouth and nose; can't eat anything with vinegar or peppers (it burns); water tastes terrible; fatigue (of course). I can [...]
Fri, Jan 26 4:47pm · @drummerboy · The Dental Side Effects of Head and Neck Cancer - Have You Been Warned
When I was diagnosed for the third time, with head and neck (right tonsil) I was not given any warning, advice, counseling at all about the side effects to come with my teeth. After 25 radiation treatments to the neck, my teeth proceeded to fall out over the course of [...]
Hello everyone! First of all I'd like to say thanks for all the helpful tips I've gotten from this community so far. I had my total laryngectomy in May of 2017 and so far things are progressing well. At this point I have the tep voice prosthesis and have recently [...]
Tue, Jan 2 2:04pm · @luisa · From Dana-Farber: Salivary Gland Cancer: What are the Symptoms?
From Dana-Farber: Salivary Gland Cancer: What are the Symptoms? Salivary gland cancer, a type of head and neck cancer, is a rare disease in which cancer cells form in the tissues of the salivary glands. Read more at www.dana-farber.org/salivary-gland-cancer/ . [...]
My husband was treated for cancer of tge tonsil caused by HPV . He underwent 40 radiations and 2 chemo treatments almost 2 years ago. Now his latest scan shows a 3 cm tumor on his kidney and new lesions on his liver. Is this common for a metastasis of [...]
I have recently been diagnosed with squamous cell carcinoma. They found a tumor on my left tonsil spread to adjacent lymph nodes. Lymph nodes I know from. I have been fighting Non-Hodgkin's Lymphoma since 1995. When we found the enlarged nodes in my left neck, we expected to find isolated [...]
my hubby is 1 year and a half since radiation... nerves gone each side of tongue.. so tongue does not work... unable to eat drink or even swallow saliva... he drools all the time... it's so sad...his tongue doesn't work and the nerves will never regenerate... so physical therapy will [...]
I had maxillectomy and paletectomy both sides Jan 18 2016. They also found left mandible cancer at the time of surgery. Treated with chemo and radiation. Now I have Stage 4 mandibular cancer and require major surgery to remove my mandible Dec 1 at Loyola. Very confident in the surgeons! [...]