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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Fri, Jan 5 6:02pm · @willieb · hands free voice

Hello everyone! First of all I'd like to say thanks for all the helpful tips I've gotten from this community so far. I had my total laryngectomy in May of 2017 and so far things are progressing well. At this point I have the tep voice prosthesis and have recently [...]

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Tue, Jan 2 2:04pm · @luisa · From Dana-Farber: Salivary Gland Cancer: What are the Symptoms?

From Dana-Farber: Salivary Gland Cancer: What are the Symptoms? Salivary gland cancer, a type of head and neck cancer, is a rare disease in which cancer cells form in the tissues of the salivary glands. Read more at www.dana-farber.org/salivary-gland-cancer/ . [...]

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Fri, May 11 9:04am · @leoff · Cancer of the tonsil

My husband was treated for cancer of tge tonsil caused by HPV . He underwent 40 radiations and 2 chemo treatments almost 2 years ago. Now his latest scan shows a 3 cm tumor on his kidney and new lesions on his liver. Is this common for a metastasis of [...]

Posted by @carolcowan, Tue, Jan 2 2:46pm

Leoff, I did see that they talked about the average time of diagnosis of metastasis from HPV cancer to distant sites being between 16.4 months and 24 months.
Carol […]

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Dec 31, 2017 · @beakmom · Newby to group, not to cancer

I have recently been diagnosed with squamous cell carcinoma. They found a tumor on my left tonsil spread to adjacent lymph nodes. Lymph nodes I know from. I have been fighting Non-Hodgkin's Lymphoma since 1995. When we found the enlarged nodes in my left neck, we expected to find isolated [...]

Posted by @beakmom, Dec 31, 2017

Thank you. One question: Not to sound ignorant, but what does NED stand for? […]

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Nov 26, 2017 · @sdcsurvivor · Salivary Duct Carcinoma

Anyone here with salivary duct carcinoma? I know it's a long shot. [...]

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Nov 20, 2017 · @annab · nerves each side of tongue destroyed by radiation

my hubby is 1 year and a half since radiation... nerves gone each side of tongue.. so tongue does not work... unable to eat drink or even swallow saliva... he drools all the time... it's so sad...his tongue doesn't work and the nerves will never regenerate... so physical therapy will [...]

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Nov 14, 2017 · @shaun · Maxillary and mandibular cancer

I had maxillectomy and paletectomy both sides Jan 18 2016. They also found left mandible cancer at the time of surgery. Treated with chemo and radiation. Now I have Stage 4 mandibular cancer and require major surgery to remove my mandible Dec 1 at Loyola. Very confident in the surgeons! [...]

Posted by @shoshy, Nov 14, 2017

My husband actually just has endoscopic nasal surgery at Loyola. Dr. Chirag Patel was his surgeon,
we were very happy and we the found the staff at Loyola to be very pleasant. […]

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Nov 10, 2017 · @milroybum25 · Oral Cancer

I had surgery back on January 31 to remove a cancerous tumor from my jawbone. It was a 14 hour surgery to remove the tumor from the jawbone and reconstruct the jaw with skin and bone from my leg. I had over 35 lymph nodes removed, a tooth, and nerves. [...]

Posted by @spiritofsol, Nov 10, 2017

My wife had the same surgery on August 11th. They removed 32 lymph nodes and found squamous cell carcinoma in 5 of them. They also found another tumor on her voice box. She also lost teeth. She had to stop radiation for several weeks due to becoming extremely ill (she […]

Liked by Milroybum25

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Oct 23, 2017 · @gdp1943wls · CAR T cell therapy

Is CAR T cell therapy been tried in head and neck cancers? [...]

Posted by @carolcowan, Oct 22, 2017
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Oct 11, 2017 · @dmc1025 · Acinic cell carcinoma to parotid gland in 1988

Hello, I am happy to stumble upon this site. Long ago, at the age of 30 in 1988 I was diagnosed with a tumor wrapped around the tail of the parotid gland. Surgery concluded it was acinic cell carcinoma and was followed by many weeks of radiation. While I am [...]

Posted by @carolcowan, Oct 11, 2017

dmc1025,
Places like Walmart sell ice shavers. They’re inexpensive and the ice is like snow. I was taking medication that made my mouth dry and made a bowl of shaved ice with a little water mixed in so it would feel more wet. I’d eat it with a spoon while […]

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Oct 6, 2017 · @tom1947 · Exercise

As fall gets here I will not be able to walk as much. What have you found to be the best exercise programs for winter. Tom [...]

Posted by @erthwlkr, Oct 5, 2017

Hi Tom – if the outdoors is too cold, buying a piece of equipment, like a stationery bike or treadmill is a choice. But another option is to join a gym. Not sure where you’re located, but Planet Fitness costs about $10 per month. You have great access to treadmills, […]

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Oct 7, 2017 · @willieb · Thick saliva

Hello! How everyone is having a GREAT Sunday. Recently I've been experiencing thick saliva in the back of my throat. It seems to be interfering with my voice prosthesis. Does anybody have any tricks to thin out this saliva? Any help would be greatly appreciated. Thank you in advance [...]

Posted by @possum, Oct 6, 2017

You might try over the counter Mucinex and see if it works. […]

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Nov 9, 2017 · @spiritofsol · Advice - Employment

I am a caregiver to my wife who is being treated for Stage IV squamous cell carcinoma of the retromolar trigone. We moved to Columbus in April, she had major surgery in August and I just got laid off. We are new here...is there any employment support organization for cancer [...]

Posted by @mdkin, Nov 9, 2017

I’m new to this group . I was diagnosed with squamous cell carcinoma of the right tonsil at stage 4 a little over a year ago . My husband and I were in the same position as you are. I needed him and he couldn’t be in two places at […]

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Sep 14, 2017 · @willieb · Shoulder pain

First of all thanks to everyone who gave me some advice on how to increase my appetite. I have tried several of those things and am eating more daily. But since my larynectomy I've also been experiencing a lot of pain in my shoulders. My doctor has prescribed a low-dose [...]

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Sep 15, 2017 · @gdp1943wls · gene therapy treatments

are there any clinical trials for gene therapy treatments for h @ n cancers? [...]

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