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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Mar 16, 2014 · @fourlaffs · Follow up radical neck dissection

Sorry for the delay it's been a whirlwind, I saw the surgeon on Monday March 3, it was a 3 hour wait full of emotional anxiety. I had 34 lymph noids removed my tumour was very aggressive and advanced stage 4. They removed a lot of shoulder muscle tissue as [...]

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Feb 28, 2014 · @fourlaffs · Hello All, I'm a 47 year old female, in the best physical [...]

Hello All, I'm a 47 year old female, in the best physical shape in my life. It wasn't always that way. I've worked hard and lost 162lbs naturally, I workout daily, eat clean, I do not smoke, take drugs, and drink occasionally. On Feb 20th 2013, my life [...]

Posted by megm, Thu, Feb 27, 2014 3:58pm

Thanks @erthwlkr, great post and great info!

[...]
Posted by fourlaffs, Fri, Feb 28, 2014 8:11am

Jeff thank you! I love your comment "Don't become Cancer." That really struck a cord with me.

I totally needed the feedback and outreach from this group. I feel like I've been on this path by myself for too long.

I spent yesterday sleeping all day/nt. Woke up

[...]

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Jan 3, 2014 · @craigandme · I WOULD LIKE TO WISH EVERYONE A VERY HAPPY NEW YEAR. HOPING [...]

I WOULD LIKE TO WISH EVERYONE A VERY HAPPY NEW YEAR. HOPING 2014 BRINGS YOU CLOSER TO A CURE AND PEACE UPON YOUR JOURNEY. GOD BLESS ONE AND ALL ...... [...]

Posted by dnylen, Fri, Jan 3, 2014 5:25am

My prayer is that their will be a huge break through and there is a huge turnaround for hope for everyone!!!

[...]

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Posted by kas1206, Fri, Jan 3, 2014 2:21pm

Thank you and same to you!!!

Sent from my iPhone

[...]
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Dec 2, 2013 · @jodio · Hello, Group. I was wondering if anyone has had issues with getting [...]

Hello, Group. I was wondering if anyone has had issues with getting approvals of insurance companies for PET scans, or chemo/radiation treatments. We had an initial PET scan scheduled, but it was cancelled b/c our insurance company had not approved the procedure. This has caused us great stress and has [...]

Posted by PSK1, Sat, Nov 30, 2013 4:31pm

I actually opened the mail today and see that my insurance company denied a ct scan w/contrast my doctor requested for early December. I had one in October that showed an irregularity that my doctor wanted to review again in 2 months. I don't know what's up with this. Maybe

[...]
Posted by dileepb, Mon, Dec 2, 2013 1:50pm

We did need pre-approval from the insurance company, but the oncologist had no problem getting approval. They usually contacted the insurance company well in advance (at least 2 weeks).

[...]
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Sep 29, 2013 · @craigandme · HI EVERYONE, THINKING OF EVERYONE ON THIS SITE ........... HOW IS EVERYONE [...]

HI EVERYONE, THINKING OF EVERYONE ON THIS SITE ........... HOW IS EVERYONE DOING ? POST SURGERY, NEW DX, WHATEVER ? THE OLD SAYING --- NO NEWS IS GOOD NEWS. HOPE THIS HOLDS TRUE ....... BEST REGARDS !!!! [...]

Posted by break60, Sun, Sep 29, 2013 7:32am

Hi

I'm 70. Played golf three weeks after open RP. Pathology disclosed no Ca in lymph nodes but seminal vesicle involvement and 4mm positive margin at base. Next step most likely is IMRT in 3-4 months.

The best therapy is just doing what you love to do and ignoring the bad

[...]

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Sep 5, 2013 · @barrymoore98434 · It has been a long time since I posted anything on any [...]

It has been a long time since I posted anything on any of the cancer site's, maybe a year and a half. My wife has died since last I posted, but I wanted to say this. I am coming up on 4 years without cancer now. It does get better, [...]

Posted by megm, Wed, Sep 4, 2013 8:19am

Thanks for your post Barry. Glad to hear that you are still cancer free! So sorry to hear about your wife.

[...]
Posted by merrymerry, Thu, Sep 5, 2013 12:59am

Thank you for the post.............I am at a little over 2 years cancer free and I do have some issues and I am trying to work with them....... some days good, some not so good. I do appreciate your thoughts and will travel with them. I am sorry that you

[...]
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Apr 10, 2014 · @scottwilson7127146 · Hi all. My Father was diagnosed with laryngeal cancer two years, had [...]

Hi all. My Father was diagnosed with laryngeal cancer two years, had radiotherapy was cured, but had a recurrence. So last year he had a total laryngectomy, was given the all clear and a few months ago was told it is back and nothing can be done. He speaks with [...]

Posted by megm, Thu, Apr 10, 2014 11:33am

So sorry for your loss.

[...]
Posted by tnash, Thu, Apr 10, 2014 6:51pm

Scott I am so sorry to hear that. Please know that you are in my prayers.

[...]
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May 6, 2014 · @kelcollis · Hi Group. My name is Kelli and I am 41. I was [...]

Hi Group. My name is Kelli and I am 41. I was diagnosed with Nasopharyngeal Cancer on May 1 of this year. I have gone through three rounds of chemo (cisplatin, 5FU and taxotere). Today I started my chemo (ciplatin) and radiation phase for the next 7 weeks. I am [...]

Posted by charlesdekranis1, Mon, May 5, 2014 1:06am

you were correct

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Posted by charlesdekranis1, Tue, May 6, 2014 1:47am

k-
it's like that. some days are really rough. not only the impact of cancer itself, but all the real life pressures which do not go away. I finally learned to take each day for itself. i have found that cancer changed me forever, and that the human body is

[...]
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Mar 29, 2014 · @greg · Hi All, I had stage 3 oropharyngeal cancer caused by HPV 3 [...]

Hi All, I had stage 3 oropharyngeal cancer caused by HPV 3 years ago and was treated at Dana-Farber with both radiation and chemotherapy. I have been cancer free since my treatments. I just want to assure any of you who are going through this treatment that although it may [...]

Posted by craigandme, Sat, Jan 18, 2014 1:59pm

HI GREG,

WHEN I ORIGINALLY ASKED THE QUESTION TO CHARLES ABOUT HPV 3, I WAS EXPECTING
HIM TO REPLY, WHICH I STILL WOULD. I UNDERSTAND THE GENERAL INFO ABOUT HPV.
WHAT I WANT TO KNOW ABOUT, ARE THE STRAINS. FROM THE RESEARCH I HAVE DONE,
STRAINS 16 & 18

[...]
Posted by tnash, Sat, Mar 29, 2014 8:06pm

This makes me so happy to hear. Thanks for sharing the good news!!

[...]
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Jun 21, 2013 · @wendy5365 · My husband finished his treatment (35 rads and 3 chemotherapies) on April [...]

My husband finished his treatment (35 rads and 3 chemotherapies) on April 5th this year, his cancer was in his neck and back of the tonge. He has been told that the cancer has gone and has to go back to see his oncologist in July. However he is still [...]

Posted by wendy5365, Fri, Jun 21, 2013 3:38pm

He's now been prescribed a weeks course of anti fungal tablets so let's see if that helps . I have been talking to his oncologists who said that it could last 3 - 4 months even longer. He's really had a bad time with this but hopefully it will clear

[...]
Posted by wendy5365, Fri, Jun 21, 2013 3:46pm

Thanks kavita Phil has had a dreadful time with this and is still using his feeding tube as his mouth is so sore with the ulcers and this fungus. He has been given all kinds of sprays and drugs to no avail. However he has now started a weeks course

[...]

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Jun 14, 2013 · @iluvhorses · 3rd Round of Cisplatin

My husband is being treated for Stage 4a tonsil cancer (HPV - SCC) with 30 rounds of radiation and 3 rounds of Cisplatin (at the beginning, middle and end of the RAD treatments). He finished his last RAD on Wednesday 6/12 and was to have his 3rd round of Cisplatin [...]

Posted by iluvhorses, Fri, Jun 14, 2013 8:37am

Please note that my husband is NOT being treated at the Dana-Farber Cancer Institute. We are located in another state.

[...]
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Jan 18, 2014 · @craigandme · IS THERE ANYWAY TO DETERMINE HOW LONG A CANCER HAS BEEN PRESENT [...]

IS THERE ANYWAY TO DETERMINE HOW LONG A CANCER HAS BEEN PRESENT IN THE BODY BASED ON STAGE AT DIAGNOSIS WITH MODERATE AGGRESIVENESS , SPECIFICALLY LARYNGEAL CANCER ? DO PHOTO'S TAKEN AT BIOPSY TELL ANY STORY ? [...]

Posted by charlesdekranis1, Wed, Jul 31, 2013 8:52am

one doc said many months. is that like "many moons"?????

[...]
Posted by craigandme, Sat, Jan 18, 2014 1:59pm

WOULD REALLY APPRECIATE MORE FACTS (OPINIONS ) IF POSSIBLE . . .
THANKS AGAIN . . .

[...]
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Jun 5, 2013 · @cdc1111 · Listen to Dr. Robert Haddad, who is the disease center leader of [...]

Listen to Dr. Robert Haddad, who is the disease center leader of the Head and Neck Oncology Program at Dana-Farber . He will join a 15-minute panel discussion on the link between throat cancer and sex. http://huff.lv/138MnhE. Live today, Wednesday, June 5 at 12:30 pm EST. [...]

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May 26, 2013 · @cchasephd · Anyone have experience with tongue reconstruction? My husband is being evaluated in [...]

Anyone have experience with tongue reconstruction? My husband is being evaluated in the next week or so for this procedure due to his being fed by PEG tube since his oral cancer surgery in June, 2009. Please let us know. Thank you. [...]

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Apr 16, 2013 · @craigandme · REMEMBER APRIL 14-20 / 2013 IS HEAD AND NECK CANCER AWARENESS WEEK. [...]

REMEMBER APRIL 14-20 / 2013 IS HEAD AND NECK CANCER AWARENESS WEEK. BURGANDY W/ AN IVORY STRIPE ARE OUR REPRESENTING COLORS. SUPPORT EDUCATION, RESEARCH AND A CURE. BE AN ADVOCATE ... GOD BLESS +++ [...]

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