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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Feb 10, 2015 · @mzsadie · Hello

Hello My husband had a very large cancer tumour removed in started in the soft palet of his mouth. He went to a doctor in July of last year with a sore throat that wouldn't go away. By the time the sent him to the first inept Ears nose and throat [...]

Posted by mzsadie, Tue, Feb 10, 2015 4:57pm

Thanks, I have heard about the rise of throat cancer I just have seen so much of it in the last few years. My husband was a hard core smoker for to many years for it not to happen but when it does it really effects everyone. Right now he

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Posted by mzsadie, Tue, Feb 10, 2015 5:08pm

Thanks so much for the info. Going to get him into a support group. I am trying to take care of my self. which can be hard. your are right I try to write down the questions but getting the doctors to take time to answer them can be a

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Jan 25, 2015 · @darryl · Hi to all, my 55 year old mate has just been diagnosed [...]

Hi to all, my 55 year old mate has just been diagnosed with Squamous cell carcinoma. It is in his voice box and the in close lymph glands. He's been told he has six months to live unless they operate. The specialist will let him know in 6 days if [...]

Posted by paulah, Sun, Jan 25, 2015 2:06am

Hi. I don't know what type of alternative therapy is offered in the clinic you mention, but something I have found in my travels on the internet is mistletoe therapy. http://www.mistletoetherapy.org.uk/research/
There is an interesting medical research paper available free from the site:
Abstract
Introduction: Complementary and alternative medicine usage,

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Posted by darryl, Sun, Jan 25, 2015 3:59am

Thankyou for your reply and information.
It is very much appreciated.
Darrylc

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Jan 22, 2015 · @juliecaroline · Head and neck

Head and neck This is my first post on this site. I have T2 and T3 squamous small cell cancer of the throat and tongue base. They are intending to treat it with radiotherapy and or laser. I am not feeling very positive about this. I would appreciate any feedback from [...]

Posted by megm, Thu, Jan 22, 2015 8:45am

Hi @juliecaroline, sorry you are having to deal with this! I am one of the moderators here and have messaged the other members of the head and neck cancer group to see if they can share their experience.

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Posted by possum, Thu, Jan 22, 2015 9:33am

I had the same problem 5 years ago and had treatment as follows. Robotic surgery to remove cancer on tongue,throat and normal surgery to remove lymph nodes on right side. This was followed by radiation. During radiation I lost my taste and had a hard time eating resulting in a

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Jan 21, 2015 · @terry03 · at maine med cancer inst. scarbrough me.had my 4th radation an getting [...]

at maine med cancer inst. scarbrough me.had my 4th radation an getting my 1st round of cisplatin iv 100mg/m2 long day [...]

Posted by grammym, Wed, Jan 21, 2015 8:38am

HI Terry, had to say HI to fellow New Englander. I am IN NH, had surgery in MMC and know they are great docs there too. Hang in there, each treatment and day gets you closer to feeling better. Marilyn

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Posted by terry03, Wed, Jan 21, 2015 5:42pm

day 2 all the side effects of CISPLATIN are starting to raise their ugly head

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Jan 20, 2015 · @fourlaffs · Is it typical for a recurrence of head and neck cancer? I [...]

Is it typical for a recurrence of head and neck cancer? I was diagnosed with stage 4 HPV on the base of my tongue 2013. After 40 rounds of radiation and 4 rounds of chemo I thought I put this behind me. Six months later same cancer appears on the [...]

Posted by cocobud, Tue, Jan 20, 2015 5:41pm

WOW, you have been through a lot. I have exactly what you had stage four head, neck and throat. Had the same regimen you had 4 chemo.40Rad.
I heard our numbers for us is 40% chance of return. This scares me also.
We have to keep fighting....Bless you and

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Oct 20, 2015 · @smbbyrne · Carcinoma in Situ of Vocal Chords and Voice Box Hi, I am [...]

Carcinoma in Situ of Vocal Chords and Voice Box Hi, I am new here and to be honest I am not sure if I should be even asking such a question seeing just how much some of you are suffering at the minute, my heart goes out to each [...]

Posted by perry, Mon, Oct 19, 2015 10:27am

Call and go earlier.

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Posted by e2ledge, Tue, Oct 20, 2015 4:39pm

Glad to know I'm not the only one. 4th surgery in 4 years? Did your CIS ever progress to invasive at any point? Would love to hear from you. I am getting monitored every 3 months, I was diagnosed with CIS and had second surgery six months ago. What type

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Dec 19, 2017 · @lmccarthy88 · I am new here and was just diagnosed with adenoid cystic carcinoma [...]

I am new here and was just diagnosed with adenoid cystic carcinoma of the salivary gland. I have an appt with Dr Teknos at The James. Does anyone have any experience with this rare cancer? I am afraid that mine has latched on to the main facial nerve. [...]

Posted by terry03, Mon, Jan 12, 2015 3:42pm

I'VE HAD NO PAIN I HAD A SWOLLEN RT GLAND IN MY THROAT..THAT DID NOT GO AWAY THIS TIME WHEN I HAD COLD. I WENT T A ENT DR, GAVE ME ANTIBIOTIS .WHEN THAT DID NOTHING HE (DR LIESS @MAINE MED. CENTE. SCARBROUGH ME. SAID THEY HAD TO COME OUT.HE

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Posted by fwaltwa, Tue, Dec 19, 2017 1:12am

How are you now that almost 3 years have passed? My husband has just been diagnosed with a similar cancer and we are considering treatment options (he has had surgery but could not get clear margins). Anything you can share about your experiece would be appreciated.

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Jan 9, 2015 · @terry03 · I'AM A 59 YR OLD MALE RECENTLY DIA. W/ STAGE 3 TONSIL [...]

I'AM A 59 YR OLD MALE RECENTLY DIA. W/ STAGE 3 TONSIL CANCER.HAD TONSILS REMOVED AN SOME OF THE CANCER .WAITING FOR (PET) SCAN RESULTS AN 1ST CONSULTATION.ANY ADVICE/OPINIONS PAST EXPERIENCE WITH THIS ISSUES WOULD GREATLY BE APPRECIATED.TKS [...]

Posted by dianelinda, Sat, Jan 3, 2015 9:25am

Good luck, and please keep us posted on the chemo the onc. reccommends. my husband is in yr. 3 not cured but doing palliative chemo.

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Posted by terry03, Fri, Jan 9, 2015 10:00am

update on my meetng w/ chemo.dr.LOOKS LIKE I WILL BE GIVEN CISPLATIN AS PART OF MY TREATMENT IT WILL INVOLVE 2 TREATMENTS OF 6HRS. EACH SESSIONS.ONE THE 1ST WEEK AN THE LAST ONE IN WEEK 4 OF MY RAD. TREATMENT. ANY INFO OR SUGGESTIONS OR CONCERNS/ADVICE OR ANYONE WITH TYPE

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Dec 22, 2014 · @mary_moore · Stage 4A Squamous cell carcinoma male age 34, never smoked, drank alcohol [...]

Stage 4A Squamous cell carcinoma male age 34, never smoked, drank alcohol or chewed tobacco. What are the chances of survival? [...]

Posted by megm, Mon, Dec 22, 2014 11:05am

Hi @mary_moore, what is your treatment plan?

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Posted by mary_moore, Mon, Dec 22, 2014 11:30am

Three Chemotherapy sessions, 3 weeks apart and Radiation therapy 5 days a week.

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Jan 3, 2015 · @charlesdekranis1 · A tough cancer, a tough process and recovery, and a toxic financial [...]

A tough cancer, a tough process and recovery, and a toxic financial sentence for the remainder of life. this is not me bitching, just wondering how great the number of those affected really are. Grants are impossible to secure post cancer. however the treatments of oral surgery, wound care , [...]

Posted by cocobud, Sat, Jan 3, 2015 11:23am

thanks Marilyn, We always need someone to talk to. I will check out the support groups,
Thanks Much

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Posted by dianelinda, Sat, Jan 3, 2015 2:40pm

Cocobud you are so right, my husband had a lung out due to cncer 20 yrs. ago, once he got past that recovery he was almost just fine except for losing his breath walking long distances. This throat cancer seems to never quit. The expense for meds, the hospitalizations for

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Nov 13, 2014 · @dianelinda · We went to the new oncologist & she was very happy Eric's [...]

We went to the new oncologist & she was very happy Eric's tumor had shrunk since his last scan. Since it had decreased & was still localized she wants to give his body a rest from chemo so his blood can rebound & his body also. In December she will [...]

Posted by megm, Thu, Nov 13, 2014 6:02am

Hi @dianelinda, so glad that you are such a good advocate for your husband and have continued to ask all the right questions & get second opinions. Thank you for sharing so that we could all be reminded of the importance of being your own advocate.

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Posted by dianelinda, Thu, Nov 13, 2014 9:13am

megm its probably the most important thing you can do.

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Nov 30, 2014 · @mzsadie · New to the cancer seen.

New to the cancer seen. My husband 58 years young had been a heavy smoker but had stopped in 2007. About 4months ago started with sore throat. And thrush. Never went away. Finally told me he had a hole in his throat so made him another Dr apt. He sent him [...]

Posted by charles, Sun, Nov 30, 2014 8:12am

Glad to hear things are moving forward!
C

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Posted by charlesdekranis1, Sat, Dec 6, 2014 8:01pm

get hooked up with a good navigator. don't focus on the money, that's going to be tough either way. focus on the treatment and the road to survival.

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Nov 5, 2014 · @misstaemakeurheartmelt · My grandad just had surgery on his jaw they removed 90% now [...]

My grandad just had surgery on his jaw they removed 90% now they saying he needs to do chemo for six weeks. Im confused i is basically like flpping a coin. Just asking to keep him in prayer. [...]

Posted by megm, Wed, Nov 5, 2014 8:30am

Thinking about you and your grandad.

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Jan 2, 2015 · @tstone · My brother was just diagnosed with Stage IV throat cancer. Just looking [...]

My brother was just diagnosed with Stage IV throat cancer. Just looking for support and encouragement in the months ahead. [...]

Posted by dianelinda, Thu, Nov 13, 2014 4:49am

Radiation & chemo can cure it my husbands cancer was gone for about 6 mos. When it returned there was nothing more they could do except weekly or monthly palliative treatment. he chose the weekly. Its been 4 yrs since diagnosis. Good luck.

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Posted by cocobud, Fri, Jan 2, 2015 2:51pm

Has he started treatment yet? II had or have stage 4 neck & throat cancer. I went through a treatment of Chemo at high doses along with daily Radiation treatment.
Now you are suffering after effects, dry mouth, fatigue, chemo brain.
Please update us on his treatment.
Prayers go

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Nov 5, 2014 · @dianelinda · My husband has terminal esophageal cancer, after initial radiation & chemo he [...]

My husband has terminal esophageal cancer, after initial radiation & chemo he was clear then it came back. Its been almost 3 yrs that he has been on palliative chemo at Dana Faber & has never had a bad reaction to chemo until last month when he was getting his [...]

Posted by dianelinda, Tue, Nov 4, 2014 6:44am

Yes that is what he had, he was given 2 very small does 2 weeks in a row, his treatment was pallitative so he was going to get small doeses once a week instead of the 1 big dose every 4 weeks. His face is still extremely swollen from it

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Posted by tstone, Wed, Nov 5, 2014 10:08am

I am praying for you. Hoping that your second opinion will have a positive result. God bless both of you.

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