Esthesioneuroblastoma (Olfactory Neuroblastoma)

Is there anyone here who also has or had Esthesioneuroblastoma (Olfactory Neuroblastoma)? I finished 4 rounds of Cisplatin & Etoposide (3 days ea.) and 30 rounds of radiation last February (2012). The radiation did not wipe the small (7mm) take up in my neck so we are going to surgically remove that just before Thanksgiving. Hopefully no more chemo as that was the worst thing I (and my wife) have ever been through.