Hello Everyone, I am undergoing 39 radiation treatment (just finished number 29) [...]

Posted by Seth @ponderit, Jul 11, 2015

Hello Everyone, I am undergoing 39 radiation treatment (just finished number 29) and have finished 7 rounds of Cisplatin and will be doing one or two more. It sounds like I am doing more than most here have said. I am lucky at this point as the only problems I am having is a burn around my neck and still have a decent sized lymph node. The doctor said it looks like we got the tonsil cancer. DOes the treatment sound harsh, is he over doing it cause I am without major symptoms. I have dry mouth but use a toothpaste that helps, Salagen and a mouth spray and gel to help with the dryness. I do not taste anything that I eat, however I have only lost about 10 pounds I am hoping that in the next two weeks I will be finished. On a side not to Cocobud, I also use Adderall about 90 mgs a day to keep the energy. It helps somewhat. Since I have HIV also I have had issues with fatigue.

Interested in more discussions like this? Go to the Head and Neck Cancers group.

Marion A. | @marionabel1 | Jul 11, 2015

I had a tonsil cancer scare. It seems like a lot of rads but there must be a reason. what does your dr say?

kayray | @shra | Jul 12, 2015

Best to you!

mohammed usman | @balausman | Jul 12, 2015

I wish you all the best, I am having the same problem though I had my radiotherapy since 2012 in Nigeria had my first follow up in Nigeria and the second follow up KSA. 
 
 
 
 
Sent from Samsung tablet

Susan Tannehill | @susantannehill | Jul 21, 2015

I had 35 radiation treatments. My taste buds shave only come back about half way. I can taste sweet and salty. Anything sour is too sour. I use Biotene spray during the day and keep a bottle of it by my bed at night.
I lost a lot of weight and got too weak to walk, so I had a feeding tube.

Seth | @ponderit | Jul 21, 2015

In reply to @susantannehill "I had 35 radiation treatments. My taste buds shave only come back about half way. I..." + (show)

Hi Susan, 
 
How long has it been since you finished treatment? Did you do any chemo? I 
finished chemo since I wrote that post and my last day of radiation is on 
Friday. I can't wait. I still have a cancerous lymph node in my neck that 
isnt going away so I am a little freaked about that. I am going to post 
something in the forum to see if I can get some answers. I hope you feel 
better soon. 
 
Best, 
Seth 
 
 
 
*Seth Solomon* 
 
sethbsolomon@gmail.com

Susan Tannehill | @susantannehill | Jul 21, 2015

In reply to @susantannehill "I had 35 radiation treatments. My taste buds shave only come back about half way. I..." + (show)

Hi Seth, 
I had two chemo treatments too. Both my oncologist and radiologist said I had the worst reactions they'd ever seen, so you will probably have a better time of it. I finished radiation two years ago. I was supposed to have three chemo treatments, but I got too weak. 
 
I had a PET scan right after radiation and it showed cancer still in my lymph node. My ENT told me I should have waited because the radiation was still working. He was right. In fact my oncologist said the radiation is still working. I've had three clear PET scans in a row. 
I feel fine and have about 95% of my energy back. I just miss eating regular food. 
Then I think of blind people and amputees, and realize I don't have it so bad. 
Susan

Please sign in or register to post a reply.