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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Sep 27, 2016 · @shivaram · I have been suffering for throat cancer

I have been suffering for throat cancer [...]

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Sep 27, 2016 · @msconnie · How can I get lymphedema sleeves?

How can I get lymphedema sleeves? Insurance will not cover and I have very limited funds

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Sep 16, 2016 · @alisa4 · My husband passed away in November 2005 at the age of 34 [...]

My husband passed away in November 2005 at the age of 34 from squamous cell carcinoma, he had tongue cancer. What annoyed me more than anything is that his dentist excused a tumor (it looked like an ulcer) on his tongue, not one time but twice. We then heard from [...]

Posted by @pati, Sep 15, 2016

The pain I still go through will be the rest of my life but at 67 I am not scared to die losing my kids was the hardest thing I ever went thogh they were 18 and 24 this has been a breeze compared to that but the pain is […]

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Jan 31, 2017 · @cancerconnect · Have a Question about Head and Neck Cancer? Ask the Expert!

CancerConnect in collaboration with The Ohio State University Comprehensive Cancer Center – James Cancer Hospital and Solove Research Institute (OSUCCC – James) to provide you with the opportunity to engage with a head and neck cancer expert, Stephen Y. Kang, MD. On October 14th, 2016, Dr. Kang will answer your [...]

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Sep 29, 2016 · @fighter13 · Waiting for scan results

Went for another Mri scan today but will probably have to wait till Tuesday for results. It's gonna be a very long weekend for me!

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Sep 19, 2016 · @voodude · Living with Stage IV HNC Cancer

Diagnosed Sept 2015, (H&NC stageIV,) Surgery October '15, then Rads and Chemo. G-tube, (esophageal-stricture,) removed in May '16. Still have daily pain, nausea, dysphagia, and some memory problems. I'm glad that I went through all of it, because I lived to hold my newborn granddaughter. I'm starting notice neck masses,

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Sep 19, 2016 · @fighter13 · Hello I'm Lori I was diagnosed with basil cell carcinoma in 2003 [...]

Hello I'm Lori I was diagnosed with basil cell carcinoma in 2003 the first surgeon I went to just did plastic surgery I thought it was infected due to my cat scratching my nose so after the first surgery I could stick my finger into the side of my nastral [...]

Posted by @fighter13, Sep 2, 2016

Thank you so much I appreciate it. […]

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Sep 10, 2016 · @cancerconnect · FDA News: Keytruda® Approved for Advanced Head and Neck Cancer

The United States Food and Drug Administration (FDA) has approved Keytruda® (pembrolizumab) for the treatment of advanced head and neck cancer that has stopped responding to platinum-based chemotherapy agents. Read more here: http://news.cancerconnect.com/keytruda-approved-advanced-head-neck-cancer/ [...]

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Sep 6, 2016 · @noella12 · My fiance is a Recovering Alcoholic (sober for 6 1/2 months now). [...]

My fiance is a Recovering Alcoholic (sober for 6 1/2 months now). He has been a drinker and smoker since he was 13 years old (now 54). He has been seeing a VA dentist that has been cleaning and pulling teeth etc. He noticed a spot at the point where [...]

Posted by @linrali, Aug 24, 2016

I’m sorry, but I’ve never heard of such a cancer. My fiance has cancer …. most helpful so far… the budwig diet. You might want to look it up. I hope you won’t need it though. […]

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Sep 13, 2016 · @man4god · Throat cancer with mets to the lungs - options?

October 2014 I was diagnosed with Stage 4 Squamos Cell Throat Cancer. I was HPV+ and had multiple lymph nodes involved on both sides of my neck. I had 35 radiation treatments finishing Feb. 1, 2015. Fast forward a year, since Feb. of this year I have periodically been coughing [...]

Posted by @megm, Aug 22, 2016

Hey @man4god, sorry you are having to deal with this! thought this overview might help: http://news.cancerconnect.com/throat-cancer/

Keytruda (an immunotherapy drug) was just approved by the FDA for patients with recurrent or metastatic head and neck squamous cell carcinoma with disease progression on or after platinum-containing chemotherapy. Have you been […]

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Aug 19, 2016 · @luisa · DFCI: Signs and Symptoms of Throat Cancer

"What Are the Signs and Symptoms of Throat Cancer?" New Blog Post from Dana-Farber

This blog story describes the various signs and symptoms of throat cancer -- including cancer of the larynx, the nasopharynx, and the oropharynx. The post begins,

"Throat cancer is a type of head and neck cancer that may

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Sep 19, 2016 · @olwen · My partner Fred (69) and I live near Blenheim, New Zealand. Blenheim [...]

My partner Fred (69) and I live near Blenheim, New Zealand. Blenheim has a small hospital (Wairau) and is served by the Nelson Marlborough District Health Board (NMDHB). NMDHB has a larger hospital in Nelson which is a little over 100km from Blenheim. Fred also has COPD. Fred had [...]

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Wed, Apr 25 3:34am · @yensid · New diagnosis of Vocal Cord Cancer

I have just been diagnosed with cancer of the vocal cord (it hurts to admit that!). My PCP says the report indicates that it is in situ and I should respond well to treatment. I've had a consult with radiation oncology. It seems there's 5 1/2 weeks of radiation ahead.

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Posted by @bubbadrag, Oct 2, 2016

Do not despair. The most uncomfortable part of my treatment. radiation was the wearing of the “mask” which prevents ones head to move during the treatment. But the radiation treatments are relatively short and one gets used to them quickly. After my series of radiation, I have been diagnosed as […]

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Aug 6, 2016 · @shkalley · Treatment decision making-- chemoradiation or no treatment

My husband was diagnosed with oropharynx cancer - Stage 4, T3 N2c M0 - and had successful surgery at the end of June. He's now trying to decide about doing chemoradiation or no treatment. The doctors recommended the chemoradiation because his lymph nodes were involved with extranodal extension and although

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Sep 1, 2016 · @murielk88 · Nasal pharyngeal cancer-- severe headaches and earaches

Hi I am Muriel I found out 3 months ago that I had a nasal pharyngeal tumor , dealing with severe headaches and earaches for a long time before finding out. I wonder if anyone could guide me on the recovery, i had 33 radiation sessions and two chimos already...Three

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