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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Sep 13, 2016 · @man4god · Throat cancer with mets to the lungs - options?

October 2014 I was diagnosed with Stage 4 Squamos Cell Throat Cancer. I was HPV+ and had multiple lymph nodes involved on both sides of my neck. I had 35 radiation treatments finishing Feb. 1, 2015. Fast forward a year, since Feb. of this year I have periodically been coughing [...]

Posted by @megm, Aug 22, 2016

Hey @man4god, sorry you are having to deal with this! thought this overview might help: http://news.cancerconnect.com/throat-cancer/

Keytruda (an immunotherapy drug) was just approved by the FDA for patients with recurrent or metastatic head and neck squamous cell carcinoma with disease progression on or after platinum-containing chemotherapy. Have you been […]

Liked by shubarna

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Aug 19, 2016 · @luisa · DFCI: Signs and Symptoms of Throat Cancer

"What Are the Signs and Symptoms of Throat Cancer?" New Blog Post from Dana-Farber

This blog story describes the various signs and symptoms of throat cancer -- including cancer of the larynx, the nasopharynx, and the oropharynx. The post begins,

"Throat cancer is a type of head and neck cancer that may

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Sep 19, 2016 · @olwen · My partner Fred (69) and I live near Blenheim, New Zealand. Blenheim [...]

My partner Fred (69) and I live near Blenheim, New Zealand. Blenheim has a small hospital (Wairau) and is served by the Nelson Marlborough District Health Board (NMDHB). NMDHB has a larger hospital in Nelson which is a little over 100km from Blenheim. Fred also has COPD. Fred had [...]

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Oct 30, 2016 · @yensid · New diagnosis of Vocal Cord Cancer

I have just been diagnosed with cancer of the vocal cord (it hurts to admit that!). My PCP says the report indicates that it is in situ and I should respond well to treatment. I've had a consult with radiation oncology. It seems there's 5 1/2 weeks of radiation ahead.

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Posted by @jfarris114, Sep 28, 2016

I was diagnosed with stage 1 squamous cell carcinoma- lesion on the vocal chord October of 2015. 30 days of radiation completed in early 2016. The bigger issue was at the start running around and getting all the pre-treatment tests. I was a drinker and light smoker on occasion, needless […]

Liked by megm

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Aug 6, 2016 · @shkalley · Treatment decision making-- chemoradiation or no treatment

My husband was diagnosed with oropharynx cancer - Stage 4, T3 N2c M0 - and had successful surgery at the end of June. He's now trying to decide about doing chemoradiation or no treatment. The doctors recommended the chemoradiation because his lymph nodes were involved with extranodal extension and although

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Sep 1, 2016 · @murielk88 · Nasal pharyngeal cancer-- severe headaches and earaches

Hi I am Muriel I found out 3 months ago that I had a nasal pharyngeal tumor , dealing with severe headaches and earaches for a long time before finding out. I wonder if anyone could guide me on the recovery, i had 33 radiation sessions and two chimos already...Three

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Jun 8, 2016 · @luisa · What Is the Best Diet for Someone with Oral Cancer? DFCI Blog

New Dana-Farber Blog Post: "What Is the Best Diet for Someone with Oral Cancer?"

The story begins,

"Side effects from oral cancer and its treatment can make it challenging to eat essential nutrients that can maintain strength and support recovery. Stacy Kennedy, MPH, RD, CSO, a senior nutritionist at Dana-Farber/Brigham and Women’s

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May 26, 2016 · @fran356 · Immunotherapy and head and neck cancer

New here-- my husband has squamous carcinoma, have been reading some about immunotherapies for his type of cancer. anyone had opdevo or kaytruda? [...]

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Mon, Feb 12 5:35am · @cocobud · Dealing with long term side effects

Hi all, Is it just me or do we all keep suffering for years to come, I am 2 years 2 months and I am still having a difficult time with memory, getting things done, takes forever. Am I alone and how long does it go on? Thanks

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Posted by @karen1965, Wed, Feb 7 10:58pm

@arodda, i feel like the doctors think im crazy cause i keep telling them my neuropathy is worse and my mouth is always dry i have no salavia left at all and no energy and very bad memory i have alot of confusion im stressed out been […]

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May 17, 2016 · @user_chd2ee883 · Voice

Voice i was diagnosed with laryngeal cancer on June 8,2015. I did 7 weeks of radiation and 3 chemo treatments. My doctors say I am doing great. My voice is still a little scratchy and hoarse. Can I expect it to get better? My thyroid was affected by the radiation. I [...]

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Jun 1, 2016 · @jscprop · Treatment Decision Making Stage IV Tonsillar Cancer

I was just diagnosed with localized stage 4 tonsillar cancer and need to talk about surgical vs non surgical options.

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Posted by @ponderit, May 8, 2016

Hi, I was diagnosed with the same in 2015. I did ultimately decided on the chemo and radiation. I did go to see if I was a candidate for tors surgery but I was not. However the way it was told to me was that if I did chemo and […]

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May 25, 2016 · @shubarna · Metastatic head and neck cancer-- need hope

Hi, my husband's yearly pet scan showed metastatic head and neck squamous cell carcinoma with recurrence in the mediastinal nodes post laryngectomy and bilateral neck dissection following one year of treatment. Primary site all clear. Liver, pancreas, brain, bone, all clear. Doctor suggests weekly systemic chemotherapy with carboplatin, paclitaxel and

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May 26, 2016 · @cocobud · I can not be alone. My pals will help me out.

Hi Guys & Gals.....Not new.....I am 2 years out. 2 year screening was good, except they want to do the scans again in 3 months.?? Is it normal to feel like the chemo takes over , you have no control?? I have had better days where I felt I was [...]

Posted by @hobo, Apr 27, 2016

Hi,
My doctor took a wait and see option but checked my blood weekly until she finally decided we needed to do a bone marrow biopsy. Don’t want that again but I survived. Results: no cancer. My red blood cells just don’t produce. Slowly I have gone from 2.5 to 3.2 […]

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Apr 11, 2016 · @luisa · "How to Reduce Your Risk of Oral Cancer" New Dana-Farber Blog Post [...]

"How to Reduce Your Risk of Oral Cancer" New Dana-Farber Blog Post The post begins, "Each year, more than 48,000 people in the United States are diagnosed with oral or oropharyngeal cancer, which occurs in the oral cavity – lips and cheeks, gums, tongue, floor or roof of [...]

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Apr 5, 2016 · @cocobud · Long term side effects

Hi Guys & Gals, OK, I am two years out, all clear. I have yet to find a Head & neck, throat survivors who have ever had your side effects from Chemo & radiation. This rarely improves. I know Head , neck & throat like most of you. People after

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