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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about side effects of radiation

Question: Is there anything I can do to reduce the mouth sores I am getting from radiation? Response: This is a known side effect of radiation that you should discuss with your radiation oncologist. Dr. Kang is an Assistant Professor in the Department of Otolaryngology – Head & [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about voice changes after radiation

Question: I just completed radiation therapy for throat cancer; my voice has changed; will it return to normal? Response: This is very common after radiation treatment for throat cancer. How the voice responds, depends on the location of the tumor, and the amount of treatment delivered to the larynx. [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about radiation therapy

Question: It seems like there are different types of machines for delivering radiation therapy for my pharyngeal cancer; how do I know which method of radiation delivery is best? Response: You are correct – for most pharynx cancers, IMRT, or intensity modulated radiation therapy, is the technique employed, which [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about Treatment and HPV Status

Question: If my cancer is HPV positive, does that change my treatment? Response: Great question, this is a hot area of research. HPV status has tremendous prognostic potential. Currently there are many studies looking at deintensifying treatment for HPV positive oropharynx cancer. There are many national and institutional clinical [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about HPV Status

Question: Does HPV status affect treatment and when should I be tested for HPV (I have throat cancer)? Response: HPV testing is typically done during the initial pathologic evaluation of your tumor. It can be performed on the primary tumor site or in the lymph nodes. One of the [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about Surgical Techniques

Question: Are there surgical techniques to reduce or minimize the effects on speech, and/or ability to chew and swallow? Response: Absolutely! Head and neck reconstructive microsurgery has advanced tremendously in the past decade. Our ability to transplant tissue from other parts of the body to reconstruct head and neck defects [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about immunotherapy

Question: Has immunotherapy improved outcomes in head and neck cancer? What’s on the horizon with clinical trials? Response: It has, particularly in the recurrent and metastatic setting. This article from AACR sums the latest findings in head and neck cancer: http://www.aacr.org/Newsroom/Pages/News-Release-Detail.aspx?ItemID=882#.WAAVuDspo9s Dr. Kang is an Assistant Professor in [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about Selecting a Surgeon

Question: Do you have any tips on how to select the best surgeon? Response: Selecting a surgeon is very important. With regard to cancer care, I always recommend evaluation and treatment at a NCI (National Cancer Institute) designated cancer center. These are typically high volume centers that are specialized [...]

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Sep 27, 2016 · @shivaram · I have been suffering for throat cancer

I have been suffering for throat cancer [...]

Posted by megm, Tue, Sep 27, 2016 10:59am

Hi @shivaram, are you in treatment?

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Sep 27, 2016 · @msconnie · How can I get lymphedema sleeves?

How can I get lymphedema sleeves? Insurance will not cover and I have very limited funds

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Posted by faith, Tue, Sep 27, 2016 6:45am

Hi msconnie, let me check with out Occupational Therapists (they run the lymphedema program here at my cancer center) to see if they know of any resource that can help you.

[...]

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Sep 16, 2016 · @alisa4 · My husband passed away in November 2005 at the age of 34 [...]

My husband passed away in November 2005 at the age of 34 from squamous cell carcinoma, he had tongue cancer. What annoyed me more than anything is that his dentist excused a tumor (it looked like an ulcer) on his tongue, not one time but twice. We then heard from [...]

Posted by widow2soon, Fri, Sep 16, 2016 6:36pm

You are strong to make that choice.knowing what I know I don't know that I would go through that. Nope

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Posted by pati, Fri, Sep 16, 2016 8:28pm

I have it too. I have had 4 shot's still hurts.I am going to spend all my money traveling if somthing goes wrong with me.My kids have more money than me.It would be my luck they give me six months and I lived for 2 and be homeless(:

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Jan 31, 2017 · @cancerconnect · Have a Question about Head and Neck Cancer? Ask the Expert!

CancerConnect in collaboration with The Ohio State University Comprehensive Cancer Center – James Cancer Hospital and Solove Research Institute (OSUCCC – James) to provide you with the opportunity to engage with a head and neck cancer expert, Stephen Y. Kang, MD. On October 14th, 2016, Dr. Kang will answer your [...]

Posted by pati, Tue, Jan 31, 2017 3:58pm

I keep having pain on and around tongue caner twice. one on side of tongue they took out with surgery .the other behind tongue and could not find. they took out 17 nodes plus 29 radiations and 2 chemos.. The pain is on my scare from the side tongue also

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Sep 29, 2016 · @fighter13 · Waiting for scan results

Went for another Mri scan today but will probably have to wait till Tuesday for results. It's gonna be a very long weekend for me!

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Posted by larryl, Wed, Sep 28, 2016 1:58pm

Had PET scan on 9-19-16, and still no word. Hoping no news is good news. Will meet with Dr. on the 29th for regular checkup. Maybe I'll know then.

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Posted by fighter13, Thu, Sep 29, 2016 10:20am

Best of luck

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Sep 19, 2016 · @voodude · Living with Stage IV HNC Cancer

Diagnosed Sept 2015, (H&NC stageIV,) Surgery October '15, then Rads and Chemo. G-tube, (esophageal-stricture,) removed in May '16. Still have daily pain, nausea, dysphagia, and some memory problems. I'm glad that I went through all of it, because I lived to hold my newborn granddaughter. I'm starting notice neck masses,

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Posted by voodude, Sun, Sep 4, 2016 11:18pm

Meant to say Diagnosed Sep. 2014, Surg 2014...

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Posted by bikerbarbi, Mon, Sep 19, 2016 6:14pm

I say mention it. Its a personal choice to choose what you want to do after you are armed with the info. The longer you wait, the harder I feel it will be for you and your family. God bless you.

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Sep 19, 2016 · @fighter13 · Hello I'm Lori I was diagnosed with basil cell carcinoma in 2003 [...]

Hello I'm Lori I was diagnosed with basil cell carcinoma in 2003 the first surgeon I went to just did plastic surgery I thought it was infected due to my cat scratching my nose so after the first surgery I could stick my finger into the side of my nastral [...]

Posted by grammym, Mon, Sep 19, 2016 10:15am

More power to you my friend. Give it a good battle; many people have fought and won. You can too. I assume you have had a second opinion??? Keep going, Marilyn

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Posted by gjones2, Mon, Sep 19, 2016 10:29pm

Wow!!! I love the attitude!,,,,

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