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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about immunotherapy

Question: Has immunotherapy improved outcomes in head and neck cancer? What’s on the horizon with clinical trials? Response: It has, particularly in the recurrent and metastatic setting. This article from AACR sums the latest findings in head and neck cancer: http://www.aacr.org/Newsroom/Pages/News-Release-Detail.aspx?ItemID=882#.WAAVuDspo9s Dr. Kang is an Assistant Professor in [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about Selecting a Surgeon

Question: Do you have any tips on how to select the best surgeon? Response: Selecting a surgeon is very important. With regard to cancer care, I always recommend evaluation and treatment at a NCI (National Cancer Institute) designated cancer center. These are typically high volume centers that are specialized [...]

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Sep 27, 2016 · @shivaram · I have been suffering for throat cancer

I have been suffering for throat cancer [...]

Posted by megm, Tue, Sep 27, 2016 10:59am

Hi @shivaram, are you in treatment?

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Sep 27, 2016 · @msconnie · How can I get lymphedema sleeves?

How can I get lymphedema sleeves? Insurance will not cover and I have very limited funds

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Posted by faith, Tue, Sep 27, 2016 6:45am

Hi msconnie, let me check with out Occupational Therapists (they run the lymphedema program here at my cancer center) to see if they know of any resource that can help you.

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Sep 16, 2016 · @alisa4 · My husband passed away in November 2005 at the age of 34 [...]

My husband passed away in November 2005 at the age of 34 from squamous cell carcinoma, he had tongue cancer. What annoyed me more than anything is that his dentist excused a tumor (it looked like an ulcer) on his tongue, not one time but twice. We then heard from [...]

Posted by widow2soon, Fri, Sep 16, 2016 6:36pm

You are strong to make that choice.knowing what I know I don't know that I would go through that. Nope

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Posted by pati, Fri, Sep 16, 2016 8:28pm

I have it too. I have had 4 shot's still hurts.I am going to spend all my money traveling if somthing goes wrong with me.My kids have more money than me.It would be my luck they give me six months and I lived for 2 and be homeless(:

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Jan 31, 2017 · @cancerconnect · Have a Question about Head and Neck Cancer? Ask the Expert!

CancerConnect in collaboration with The Ohio State University Comprehensive Cancer Center – James Cancer Hospital and Solove Research Institute (OSUCCC – James) to provide you with the opportunity to engage with a head and neck cancer expert, Stephen Y. Kang, MD. On October 14th, 2016, Dr. Kang will answer your [...]

Posted by pati, Tue, Jan 31, 2017 3:58pm

I keep having pain on and around tongue caner twice. one on side of tongue they took out with surgery .the other behind tongue and could not find. they took out 17 nodes plus 29 radiations and 2 chemos.. The pain is on my scare from the side tongue also

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Sep 29, 2016 · @fighter13 · Waiting for scan results

Went for another Mri scan today but will probably have to wait till Tuesday for results. It's gonna be a very long weekend for me!

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Posted by larryl, Wed, Sep 28, 2016 1:58pm

Had PET scan on 9-19-16, and still no word. Hoping no news is good news. Will meet with Dr. on the 29th for regular checkup. Maybe I'll know then.

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Posted by fighter13, Thu, Sep 29, 2016 10:20am

Best of luck

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Sep 19, 2016 · @voodude · Living with Stage IV HNC Cancer

Diagnosed Sept 2015, (H&NC stageIV,) Surgery October '15, then Rads and Chemo. G-tube, (esophageal-stricture,) removed in May '16. Still have daily pain, nausea, dysphagia, and some memory problems. I'm glad that I went through all of it, because I lived to hold my newborn granddaughter. I'm starting notice neck masses,

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Posted by voodude, Sun, Sep 4, 2016 11:18pm

Meant to say Diagnosed Sep. 2014, Surg 2014...

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Posted by bikerbarbi, Mon, Sep 19, 2016 6:14pm

I say mention it. Its a personal choice to choose what you want to do after you are armed with the info. The longer you wait, the harder I feel it will be for you and your family. God bless you.

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Sep 19, 2016 · @fighter13 · Hello I'm Lori I was diagnosed with basil cell carcinoma in 2003 [...]

Hello I'm Lori I was diagnosed with basil cell carcinoma in 2003 the first surgeon I went to just did plastic surgery I thought it was infected due to my cat scratching my nose so after the first surgery I could stick my finger into the side of my nastral [...]

Posted by grammym, Mon, Sep 19, 2016 10:15am

More power to you my friend. Give it a good battle; many people have fought and won. You can too. I assume you have had a second opinion??? Keep going, Marilyn

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Posted by gjones2, Mon, Sep 19, 2016 10:29pm

Wow!!! I love the attitude!,,,,

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Sep 10, 2016 · @cancerconnect · FDA News: Keytruda® Approved for Advanced Head and Neck Cancer

The United States Food and Drug Administration (FDA) has approved Keytruda® (pembrolizumab) for the treatment of advanced head and neck cancer that has stopped responding to platinum-based chemotherapy agents. Read more here: http://news.cancerconnect.com/keytruda-approved-advanced-head-neck-cancer/ [...]

Posted by ponderit, Sat, Sep 10, 2016 1:27pm

I had read that but it not walk in the park. The side effects seem worse than chemo. OS is a few months longer than docetaxel.

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Sep 6, 2016 · @noella12 · My fiance is a Recovering Alcoholic (sober for 6 1/2 months now). [...]

My fiance is a Recovering Alcoholic (sober for 6 1/2 months now). He has been a drinker and smoker since he was 13 years old (now 54). He has been seeing a VA dentist that has been cleaning and pulling teeth etc. He noticed a spot at the point where [...]

Posted by noella12, Thu, Sep 1, 2016 4:41am

What have you done so far and what are your plans for the Base Tounge Cancer? is there a special name for it??

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Posted by noella12, Tue, Sep 6, 2016 6:08am

Ok - Biopsy said NOT CANCER but...just a weird CALLOUS! on and in gum. So...they pulled two more teeth! Fun? Wow. He's taking it well though...only two more pulling to go (out of 6 teeth). Thank you all for your concern!

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Sep 13, 2016 · @man4god · Throat cancer with mets to the lungs - options?

October 2014 I was diagnosed with Stage 4 Squamos Cell Throat Cancer. I was HPV+ and had multiple lymph nodes involved on both sides of my neck. I had 35 radiation treatments finishing Feb. 1, 2015. Fast forward a year, since Feb. of this year I have periodically been coughing [...]

Posted by man4god, Tue, Sep 13, 2016 1:31pm

@megm
Since my last post, I have had the invasive bronchoscopy on September 1. During that, the doctors did not find the source of bleeding in my lungs. They took multiple biopsies from both lungs and sent everything for pathology and a lot of other testing. In short, nothing was

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Posted by megm, Tue, Sep 13, 2016 2:20pm

Sounds like you have been through a lot over the last couple of weeks! Sorry you are having to deal with all of this.

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Aug 19, 2016 · @luisa · DFCI: Signs and Symptoms of Throat Cancer

"What Are the Signs and Symptoms of Throat Cancer?" New Blog Post from Dana-Farber

This blog story describes the various signs and symptoms of throat cancer -- including cancer of the larynx, the nasopharynx, and the oropharynx. The post begins,

"Throat cancer is a type of head and neck cancer that may

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Sep 19, 2016 · @olwen · My partner Fred (69) and I live near Blenheim, New Zealand. Blenheim [...]

My partner Fred (69) and I live near Blenheim, New Zealand. Blenheim has a small hospital (Wairau) and is served by the Nelson Marlborough District Health Board (NMDHB). NMDHB has a larger hospital in Nelson which is a little over 100km from Blenheim. Fred also has COPD. Fred had [...]

Posted by olwen, Tue, Aug 16, 2016 12:58pm

We had a talk to the oncologist, and saw the scans. There are a number of nodes on the left side of Fred's neck, and a number in his lungs, but all small biggest are abou 1cm. They are recent, as in the past few months. Fred has no symptoms

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Posted by bikerbarbi, Mon, Sep 19, 2016 6:27pm

First I want to say im sorry you are having this issue with Drs. As patients we must demand answers bc in my opinion, we become a number and some Drs you must command attn and answers. That is what they are working for, right? Please dont assume anything and

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Wed, Apr 25 3:34am · @yensid · New diagnosis of Vocal Cord Cancer

I have just been diagnosed with cancer of the vocal cord (it hurts to admit that!). My PCP says the report indicates that it is in situ and I should respond well to treatment. I've had a consult with radiation oncology. It seems there's 5 1/2 weeks of radiation ahead.

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Posted by yensid, Sun, Oct 30, 2016 5:42pm

Thank you so much.

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Posted by pauline1964, Wed, Apr 25, 2018 3:34am

Hi just seen ur post and had laser for the same thing but they insisted I had six weeks radiotherapy after wish I didn’t have it
finished it in March
And still do not understand why
Now I read ur post looks like maybe they did not need to do

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