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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Feb 15, 2017 · @cancerconnect · Research News

Research news: twice-daily radiation, when combined with chemotherapy, reduced deaths by 20% compared to the best standard treatment of once-daily radiotherapy with chemotherapy. It also reduced the risk of the cancer getting worse by 23%. Read more here: http://news.cancerconnect.com/twice-daily-radiation-therapy-reduces-mortality-head-neck-cancer/ [...]

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Jan 30, 2017 · @colinc8 · Stage 4A Toncil Cancer- Story of Hope!

Hi everyone.I'm almost one year out from treatment from stage 4a toncil cancer HPV pos.Thankfully I'm still clean or NED so far.I started out with T2N2BM0.Treatment was surgery removed left toncil, Removal of 20 lymph nodes left neck,then 66gy radiation over 33sessions+Carboplatin.Glad to answer any question I can or learn

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Feb 16, 2017 · @suggi · Voice-sparing treatment: Options?

Is it true that laporascopy surgery is safer than radiation as far as saving the voice, swallowing, etc.?

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Posted by @user_ch3ded857, Jan 25, 2017

I don’t know anything about that surgery, I had 45 treatments for
lung cancer and another 10 to the brain as a precaution. The side
effects have been bad for me. First the brain fog and then my hair
hasn’t come back enough to go without a hat or wig. […]

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Jan 24, 2017 · @timhall6627 · Mouth cancer- flap leaks

Hi my boyfriend has mouth cancer and when he drinks sugar drinks his flap on his face leaks does anyone have this problem. Thanks

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Mar 17, 2017 · @dmcfayden · On Hospice Care for Throat Cancer- What to Expect?

84 yr old mother diagnosed Sept 2016 with throat cancer. She does not want treatment and is on hospice care. I am concerned she will choke to death but Dr said it will most likely invade her cerotic artery first. Has anyone dealt with this type of cancer? would like

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Posted by @wojahns, Mar 6, 2017

Why no stomach tube? Then you can give her any food she needs? […]

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Dec 28, 2016 · @ivolkweis · Experience with SINUS SQUAMOUS CELL CARCINOMA

Is anyone familiar with SINUS SQUAMOUS CELL CARCINOMA? TKS

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Posted by @tess1012, Dec 27, 2016

I am currently undergoing radiation treatment for a reoccurrence of sinus squamous cell carcinoma. I had a tumor in july of 2015 it was removed the margins were clear so we did not do any further treatments. One year later almost to the day the tumor was back same location. […]

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Jan 1, 2017 · @wojahns · Anybody tried Yervoy with Opdivo?

Anybody tried Yervoy with Opdivo?? I'm considering it, but Yervoy has mean side-effect possibilities. I had no side effects from Opdivo for HNSSC. Thanks.

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Posted by @ponderit, Nov 30, 2016

I had tonsil cancer and in October of 15 I was considered NED. I jump at any little sign that might show that I am about to have a reoccurrence.  I was very surprised at the NED as I was stage 4 and HIV positive. A good friend of mine […]

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Oct 17, 2016 · @megm · Research News: Particular HPV Strain Linked to Improved Prognosis

In an analysis of survival data for patients with a particular type of head and neck cancer, researchers from the University of North Carolina Lineberger Comprehensive Cancer Center confirmed findings that a particular strain of HPV, a virus linked to a number of cancers, resulted in better overall survival for [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about stress and cancer recurrence

Question: Does excessive amounts of stress increase the change of my cancer returning? And is there a time frame after cancer occurrence that I no longer need be concerned about return of cancer? 3 yrs? 5 yrs? Response: This is a very interesting question! I think most physicians would [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about neck cramps after radiation

Question: From time to time, I have cramps from my radiation to the side of my neck. How would I go about treating these muscle contractions? Response: I would discuss this with your radiation oncologist. It is possible that physical therapy may be helpful in your case. Dr. [...]

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Mar 21, 2017 · @guestmoderatordrkang · Ask the Expert: Question about mouth side effects

Question: I am 2 1/2 years out from having stage III tongue cancer. I still have a very dry mouth, very sticky & gooey saliva. In addition, most of the time I feel like there's a film on my teeth, even right after I brush. Is there anything to help [...]

Posted by @whitecobra, Mar 21, 2017

Sorry but no Medicare or Medicaid will pay for dental implants or the structure on top of them
ALL attempts over 30 years in practice have failed they basically say it is a Dental issue and they leave it up to Dental Insurance to deal with it. If the patient has […]

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Oct 30, 2016 · @guestmoderatordrkang · Ask the Expert: Question about dry mouth after radiation

Question: Does radiation treatment for vocal chord cancer cause or intensify dry mouth? Response: Yes. Radiation treatment, while required to treat cancer, also results in dry mouth, known as xerostomia, as a result of treatment. Dr. Kang is an Assistant Professor in the Department of Otolaryngology – Head [...]

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Feb 15, 2017 · @guestmoderatordrkang · Ask the Expert: Question about precision medicine

Question: Are there any advances in the treatment of neck cancers that use precision medicines? Response: Yes. Advances in the treatment of head and neck cancer are occurring by identifying novel targets, exploring mechanisms of tumor resistance to current therapy, and identifying effective combinations of treatments, whether chemotherapeutic or [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about side effects of radiation

Question: Is there anything I can do to reduce the mouth sores I am getting from radiation? Response: This is a known side effect of radiation that you should discuss with your radiation oncologist. Dr. Kang is an Assistant Professor in the Department of Otolaryngology – Head & [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about voice changes after radiation

Question: I just completed radiation therapy for throat cancer; my voice has changed; will it return to normal? Response: This is very common after radiation treatment for throat cancer. How the voice responds, depends on the location of the tumor, and the amount of treatment delivered to the larynx. [...]

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