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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Aug 4, 2017 · @shoshy · My husband had aendocarcinoma of the sinonasal area, it was already touching [...]

My husband had aendocarcinoma of the sinonasal area, it was already touching the lining of the brain. We don't know if we should do photon or proton therapy. Anybody?..... Also what if he needs to be radiated again in case of recurrence? [...]

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Mar 28, 2017 · @krug · Hello! I am Brazilian and in August of 2015 I was diagnosed [...]

Hello! I am Brazilian and in August of 2015 I was diagnosed with mucoepidermoid carcinoma of the minor salivary gland, located on the hard and soft palate. I did two surgeries and I'm following up. I was informed that this cancer is rare. I would like to know more about [...]

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Feb 22, 2017 · @cancerconnect · Research News: Targeted Radiotherapy Reduces Dry Mouth

A troublesome side effect of radiation therapy treatment of cancers involving the head and neck is dry mouth. This occurs as a consequence of radiation damage to the salivary glands. According to a new study, changing the intensity of radiotherapy to protect the salivary glands could help treat a rare [...]

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Feb 16, 2017 · @cancerconnect · Advances in treatment of head and neck cancer in 2016

Check it out here: http://news.cancerconnect.com/2016-year-review-advances-management-head-neck-cancer/ [...]

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May 12, 2017 · @charles · Keytruda

Anyone had experience with Keytruda to treat their cancer? [...]

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Feb 15, 2017 · @cancerconnect · Research News

Research news: twice-daily radiation, when combined with chemotherapy, reduced deaths by 20% compared to the best standard treatment of once-daily radiotherapy with chemotherapy. It also reduced the risk of the cancer getting worse by 23%. Read more here: http://news.cancerconnect.com/twice-daily-radiation-therapy-reduces-mortality-head-neck-cancer/ [...]

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Jan 30, 2017 · @colinc8 · Stage 4A Toncil Cancer- Story of Hope!

Hi everyone.I'm almost one year out from treatment from stage 4a toncil cancer HPV pos.Thankfully I'm still clean or NED so far.I started out with T2N2BM0.Treatment was surgery removed left toncil, Removal of 20 lymph nodes left neck,then 66gy radiation over 33sessions+Carboplatin.Glad to answer any question I can or learn

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Feb 16, 2017 · @suggi · Voice-sparing treatment: Options?

Is it true that laporascopy surgery is safer than radiation as far as saving the voice, swallowing, etc.?

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Posted by @user_ch3ded857, Jan 25, 2017

I don’t know anything about that surgery, I had 45 treatments for
lung cancer and another 10 to the brain as a precaution. The side
effects have been bad for me. First the brain fog and then my hair
hasn’t come back enough to go without a hat or wig. […]

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Jan 24, 2017 · @timhall6627 · Mouth cancer- flap leaks

Hi my boyfriend has mouth cancer and when he drinks sugar drinks his flap on his face leaks does anyone have this problem. Thanks

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Mar 17, 2017 · @dmcfayden · On Hospice Care for Throat Cancer- What to Expect?

84 yr old mother diagnosed Sept 2016 with throat cancer. She does not want treatment and is on hospice care. I am concerned she will choke to death but Dr said it will most likely invade her cerotic artery first. Has anyone dealt with this type of cancer? would like

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Posted by @wojahns, Mar 6, 2017

Why no stomach tube? Then you can give her any food she needs? […]

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Dec 28, 2016 · @ivolkweis · Experience with SINUS SQUAMOUS CELL CARCINOMA

Is anyone familiar with SINUS SQUAMOUS CELL CARCINOMA? TKS

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Posted by @tess1012, Dec 27, 2016

I am currently undergoing radiation treatment for a reoccurrence of sinus squamous cell carcinoma. I had a tumor in july of 2015 it was removed the margins were clear so we did not do any further treatments. One year later almost to the day the tumor was back same location. […]

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Jan 1, 2017 · @wojahns · Anybody tried Yervoy with Opdivo?

Anybody tried Yervoy with Opdivo?? I'm considering it, but Yervoy has mean side-effect possibilities. I had no side effects from Opdivo for HNSSC. Thanks.

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Posted by @ponderit, Nov 30, 2016

I had tonsil cancer and in October of 15 I was considered NED. I jump at any little sign that might show that I am about to have a reoccurrence.  I was very surprised at the NED as I was stage 4 and HIV positive. A good friend of mine […]

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Oct 17, 2016 · @megm · Research News: Particular HPV Strain Linked to Improved Prognosis

In an analysis of survival data for patients with a particular type of head and neck cancer, researchers from the University of North Carolina Lineberger Comprehensive Cancer Center confirmed findings that a particular strain of HPV, a virus linked to a number of cancers, resulted in better overall survival for [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about stress and cancer recurrence

Question: Does excessive amounts of stress increase the change of my cancer returning? And is there a time frame after cancer occurrence that I no longer need be concerned about return of cancer? 3 yrs? 5 yrs? Response: This is a very interesting question! I think most physicians would [...]

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Oct 14, 2016 · @guestmoderatordrkang · Ask the Expert: Question about neck cramps after radiation

Question: From time to time, I have cramps from my radiation to the side of my neck. How would I go about treating these muscle contractions? Response: I would discuss this with your radiation oncologist. It is possible that physical therapy may be helpful in your case. Dr. [...]

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