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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Nov 30, 2014 · @mzsadie · New to the cancer seen.

New to the cancer seen. My husband 58 years young had been a heavy smoker but had stopped in 2007. About 4months ago started with sore throat. And thrush. Never went away. Finally told me he had a hole in his throat so made him another Dr apt. He sent him [...]

Posted by charles, Sun, Nov 30, 2014 8:12am

Glad to hear things are moving forward!
C

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Posted by charlesdekranis1, Sat, Dec 6, 2014 8:01pm

get hooked up with a good navigator. don't focus on the money, that's going to be tough either way. focus on the treatment and the road to survival.

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Nov 5, 2014 · @misstaemakeurheartmelt · My grandad just had surgery on his jaw they removed 90% now [...]

My grandad just had surgery on his jaw they removed 90% now they saying he needs to do chemo for six weeks. Im confused i is basically like flpping a coin. Just asking to keep him in prayer. [...]

Posted by megm, Wed, Nov 5, 2014 8:30am

Thinking about you and your grandad.

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Jan 2, 2015 · @tstone · My brother was just diagnosed with Stage IV throat cancer. Just looking [...]

My brother was just diagnosed with Stage IV throat cancer. Just looking for support and encouragement in the months ahead. [...]

Posted by dianelinda, Thu, Nov 13, 2014 4:49am

Radiation & chemo can cure it my husbands cancer was gone for about 6 mos. When it returned there was nothing more they could do except weekly or monthly palliative treatment. he chose the weekly. Its been 4 yrs since diagnosis. Good luck.

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Posted by cocobud, Fri, Jan 2, 2015 2:51pm

Has he started treatment yet? II had or have stage 4 neck & throat cancer. I went through a treatment of Chemo at high doses along with daily Radiation treatment.
Now you are suffering after effects, dry mouth, fatigue, chemo brain.
Please update us on his treatment.
Prayers go

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Nov 5, 2014 · @dianelinda · My husband has terminal esophageal cancer, after initial radiation & chemo he [...]

My husband has terminal esophageal cancer, after initial radiation & chemo he was clear then it came back. Its been almost 3 yrs that he has been on palliative chemo at Dana Faber & has never had a bad reaction to chemo until last month when he was getting his [...]

Posted by dianelinda, Tue, Nov 4, 2014 6:44am

Yes that is what he had, he was given 2 very small does 2 weeks in a row, his treatment was pallitative so he was going to get small doeses once a week instead of the 1 big dose every 4 weeks. His face is still extremely swollen from it

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Posted by tstone, Wed, Nov 5, 2014 10:08am

I am praying for you. Hoping that your second opinion will have a positive result. God bless both of you.

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Oct 29, 2014 · @kristie · Throat cancer stage 4 chemo radiation therapy. How does the care giver [...]

Throat cancer stage 4 chemo radiation therapy. How does the care giver prepare [...]

Posted by megm, Wed, Oct 29, 2014 7:44am

Hi @kristie- thanks for your post and so sorry you are having to deal with this. How are you holding up? I am one of the moderators here and will message some of the other caregivers to see if they can share their experience. I thought this article might be

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Oct 8, 2014 · @charlesdekranis1 · Extended effects. Physical and Financial. the best advice i have is learn [...]

Extended effects. Physical and Financial. the best advice i have is learn the phrase financially and toxic. toxic. The chemo and the radiation poisoned my system from the start. very tough. 15 month's later, i just responded favorably to a friend from Wyoming/now New Mexico who invited me to float [...]

Posted by charlesdekranis1, Wed, Oct 8, 2014 1:29pm

TOXIC

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Posted by charlesdekranis1, Wed, Oct 8, 2014 3:02pm

KEEP THE FAITH IN THE DARKEST OF TIMES. IT IS A TOUGH CANCER BUT YOU CAN SURVIVE.

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Oct 10, 2014 · @survivor0414 · I am having extreme muscle spasms in my neck caused by radiation [...]

I am having extreme muscle spasms in my neck caused by radiation I received for head and neck cancer 3 years ago. Does anyone have any suggestions on how to manage the spasms? Also, can anyone recommend a physician or physical therapist in the Columbus, OH area who has experience [...]

Posted by megm, Fri, Oct 10, 2014 2:06pm

Hi @survivor0414, were you able to find a physical therapy in your area?

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Dec 24, 2014 · @dianelinda · Advanced throat cancer, my husband was diagnosed 3 yrs. ago & had [...]

Advanced throat cancer, my husband was diagnosed 3 yrs. ago & had radiation +chemo, then carpoplatin & 5FU, erbitux & is now on Taxol. Very very sick on taxol. Anyone have any experience w/taxol? [...]

Posted by cocobud, Wed, Dec 24, 2014 7:07am

It sounds like you have some confused doctors. Have you gone elsewhere for a second opinion. I surely would not lay around waiting to die. How old are you?

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Posted by dianelinda, Wed, Dec 24, 2014 9:36am

My husband just turned 75.

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Sep 16, 2014 · @imogen42 · My son had a swollen lymph gland removed this time last year [...]

My son had a swollen lymph gland removed this time last year which was diagnosed as secondary cancer The primary was found at the base of his tongue and treated with six weeks radiation treatment which was successful. His go now suspects that cancer may have returned and has ordered [...]

Posted by megm, Mon, Sep 15, 2014 5:00pm

Hi @imogen42, I can understand your worry and concern. The waiting can be so difficult! Keep us posted.

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Posted by imogen42, Tue, Sep 16, 2014 12:31am

Thanks Good news all clear Appears he has infected throat and sinuses Whew would have been a bit much to take at the moment my husband has CLL with secondary CAD In remission at the moment and my other son and daughter in law were killed exactly 12 months ago

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Jul 30, 2014 · @kavita · my dad 67yrs,with primary oral,with recurrence now has mets..in lungs,liver...has been thru [...]

my dad 67yrs,with primary oral,with recurrence now has mets..in lungs,liver...has been thru a lot..n practically has no treatment options available...he sleeps 18hrs,have constipation..fever spikes..malaise...is there any suggestions? to help him in any of this..to soothe him.. [...]

Posted by megm, Wed, Jul 30, 2014 12:30pm

Hi @kavita- have his doctors suggested any palliative care options to help alleviate the symptoms you mentioned?

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Aug 1, 2014 · @ericj · URGENT Request - Cryotherapy for Glottis tumour

URGENT Request - Cryotherapy for Glottis tumour I have a localised glottis tumour, which although not spread is expected to grow and kill me in 6 weeks. I've been given option of radiotherapy but side effects and chances are not good. I have read about cryotherapy (cryoablation) as far less evasive [...]

Posted by megm, Mon, Jul 28, 2014 1:58pm

Thanks for sharing your experience @elaineinfairfax. Thought this information on the NCI website might be helpful to anyone wanting to know more about high dose vitamin C-- they discuss some of the studies that have been done also: http://www.cancer.gov/cancertopics/pdq/cam/highdosevitaminc/patient/page2

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Posted by elaineinfairfax, Fri, Aug 1, 2014 9:15pm

Eric, don't know what your attitude is about prayer as an "alternative therapy," but here's the testimony of a guy cured from throat cancer that should have killed him:

Church planter, Walter Barrientos spoke at Church of Holy Spirit on October 13, 2013, sharing a testimony of God's

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Aug 3, 2014 · @ericj · Does anyone know if cryotherapy and/or photodynamic therapy could be used to [...]

Does anyone know if cryotherapy and/or photodynamic therapy could be used to treat a localised squamous cell cancer on my vocal chords (glottis); the tumour measures just over 1 inch? [...]

Posted by megm, Sun, Aug 3, 2014 9:28am

Hi @ericj- have you checked out pubmed to see if any studies have been published on cryotherapy or photodynamic therapy? You can access this database of published trial results here: www.pubmed.com
Hope this helps!

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Jul 14, 2014 · @kavita · hey my dad,67yr old,having twice oral cancer,treated with surgery,chemo n radiotherapy with [...]

hey my dad,67yr old,having twice oral cancer,treated with surgery,chemo n radiotherapy with brachytherapy...in last 8yrs...has shown up with liver metastasis,with a few lung n spleen lesions also...probably few is it...can somebody suggest some practical guides or some music therapy or other so that he suffers less...thanks... [...]

Posted by megm, Mon, Jul 14, 2014 7:37am

Hi @kavita-- check out the ongoing discussions in the head and neck cancer group here: http://cancerconnect.com/group/head-and-neck-cancer

I also thought this article on music therapy might be helpful: http://news.cancerconnect.com/complementary-therapies-in-cancer-care-music-therapy/

There are some other tips here that might also be of interest: http://news.cancerconnect.com/category/clinical-trial-info/complementary-alternative-medicine/

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Jul 11, 2014 · @andyc · Hi. I'm Andy. I was diagnosed on Valentines day with ARMS. A [...]

Hi. I'm Andy. I was diagnosed on Valentines day with ARMS. A tumor in my right maxillary sinus and several lymph nodes involved in my right neck. I've had a round of chemotherapy and surgery. I'm starting my second round of chemotherapy and radiation. I tolerated the chemotherapy very well. [...]

Posted by andyc, Fri, Jul 11, 2014 4:31pm

Thank you for your time to give me some good insight and encouragement.

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Posted by andyc, Fri, Jul 11, 2014 4:32pm

I appreciate your advice. Thank you.

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Jul 13, 2014 · @emessev · Hi everybody, i'm new here and diagnosed parotid gland cancer 2 months [...]

Hi everybody, i'm new here and diagnosed parotid gland cancer 2 months ago. Tumor is in parotid gland including the facial nerve and a few adjacent lymph nodes. No distant spread found on pet-ct. As the primary cure is surgery for this cancer i had surgery with ready patologyst . [...]

Posted by dziesemer, Fri, Jun 27, 2014 4:47pm

Was a biopsy done on the tumor? The biopsy will tell the physician what type of treatment will work the best on that specific cancer. Radiation, immune therapy, surgery, or chemotherapy. In some cases all four types of treatment maybe needed. Each treatment is very specific to a specific type

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Posted by cocobud, Sun, Jul 13, 2014 4:16pm

One thing you will find. You are never told of the side effects that can linger for years and recuperation is a nightmare. I had neck & throat cancer, they could not operate. So in a six week period i have had 3 weeks of chemo 6 weeks of radiation,

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