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The Head and Neck CancerConnect Community is for everyone whose life has been touched by a head and neck cancer. It is a place where you can safely voice your ideas, thoughts, and concerns, benefit from the experience of others, and most importantly, realize that you are not alone. This community is for you and about you.

Registering for the CancerConnect Community will enable you to ask questions, share your experiences, and gain knowledge from others who are confronting similar challenges. As part of the community, you may also take part in national conversations and events on CancerConnect. To do so, you will not need to register again.

Apr 8, 2015 · @colleend · My mom is half way through radiation tx for oral cancer and [...]

My mom is half way through radiation tx for oral cancer and is extremely tired is this normal? She is 82 years old. [...]

Posted by joannamorrison, Wed, Apr 8, 2015 12:10pm

Hi @colleend, I'm one of the moderators here and I've messaged the other members of the the head and neck cancer group to see if anyone can share their experience with you. In the mean time, you might find these links on side effects of radiation and managing fatigue to

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Posted by charlesdekranis1, Wed, Apr 8, 2015 12:19pm

82. God bless her. Radiation for head and neck is one of the roughest there is. i was 58 when i went through it and barely made it.
i am back with stage 4 bone cancer to which there is little hope. pray for mom that her cancer does not

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Apr 14, 2015 · @juliecaroline · Throat operation recovery

Throat operation recovery Possum. Thank you for your tips. Definitely going to try mucinex. [...]

Posted by megm, Tue, Apr 14, 2015 12:36pm

Hi @juliecaroline, how are you doing? just checking in.

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Mar 30, 2015 · @juliecaroline · Throat operation recovery

Throat operation recovery Chrisgate . I too had robotic surgery for throat cancer 3 weeks ago. I still struggle to eat and drink and need lots of water with my food to swallow. I also cough and bring up lots of mucus. However these symptoms are improving daily. [...]

Posted by possum, Mon, Mar 30, 2015 8:45am

Julie I had robotic surgery for tongue and throat cancer 51/2 years ago. What worked for me was milkshakes made with liquid muscle milk, cup of milk and a scoop of frozen vanila yogurt. I also liked regular greek yogurt. The combo gave me about 30 grams of protein. Mucinex

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Mar 14, 2015 · @juliecaroline · Head and neck

Head and neck I had my second op last tuesday. They took away small slivers to check for cancer cells. I was only in hospital a day this time as opposed to 12 days for the main op. Fortunately I didn't have a feeding tube as I had a bad experience [...]

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Mar 10, 2015 · @tweetskat · Hello all...my husband is four months out of treatments and went back [...]

Hello all...my husband is four months out of treatments and went back for his three month CT scan...got results last week and the oncologist says there is an area of concern around his thyroid. What could this mean...I know some things it could mean but wanted to know if anyone [...]

Posted by carolcowan, Tue, Mar 10, 2015 10:12am

Kat,
I actually mentioned the possibility of the "area of concern" being thyroid cancer because it's so curable when caught early. Then again, who wants to hear they have a second kind of cancer. I hope you get good news on Thursday.
Carol

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Posted by tweetskat, Tue, Mar 10, 2015 10:35am

Oh I know Carol...it's ok. We have the possibility already in our minds but hoping for better outcome. He had two different types already in his throat and neck so hoping another isn't there. Had tonsils removed and tumors went away after treatment. Lymphnoids ate smaller and just being out

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Jul 6, 2016 · @mzsadie · Radiation for Throat Cancer

Hi, everyone I have been on before my husband is getting radiation therapy for throat cancer. He does have his good days but it's the nights that are getting to me.He takes naps during the day. I.understand I try but can't always. Well when he has a really busy day

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Posted by carolcowan, Sun, Jun 12, 2016 5:12pm

I'm Carol, a moderator here and an RN. I'm concerned that the knee pain is a blood clot. With your husband's history of MI's (myocardial infarctions which are "heart attacks"), and his immobility I think you need to get that checked out. In the meantime, if his lower leg feels

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Liked by Faith, helga

Posted by jscprop, Wed, Jul 6, 2016 1:12pm

Your husband and I are on exactly same treatment plan. My tonsil cancer is locally advanced with a metastasis to the neck lymph. Stage 4 technically but Dr says its curable HPV positive. I've had 20 radiations and 2 chemos so far. I pretty much use my feeding tube and

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Feb 26, 2015 · @juliecaroline · Head and neck

Head and neck Hya Megm, Thank you for asking about me. I was  discharged from hospital on Monday. I am able to eat a soft diet washed down with plenty of water. I am due to have a smaller operation on the 10 the march. Apparently I will not need any [...]

Posted by megm, Thu, Feb 26, 2015 10:18am

Thanks so much for the update @juliecaroline!!!

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Feb 25, 2015 · @juliecaroline · Swallowing tube

Swallowing tube After having spent a few days wondering if my feeding tube was a benefit or hindrance. I coughed it up whilst trying porridge for the first time. I can now swallow much better and should be discharged from hospital in 2 days. I am now feeling much more independent [...]

Posted by megm, Wed, Feb 25, 2015 1:06pm

Hi @juliecaroline, how are you doing?

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Mar 25, 2015 · @juliecaroline · Feeding tube

Feeding tube Thank you everyone for your responses to my question. Should I have my feeding tube removed.  I am still on the said tube , however I am able to swallow small amounts of liquids , although not enough to sustain me. Since my last post I have been informed [...]

Posted by megm, Fri, Feb 20, 2015 6:37am

Thanks for giving us an update, thinking about you!

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Posted by cocobud, Wed, Mar 25, 2015 6:52pm

Wise Move...Good luck

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Feb 18, 2015 · @juliecaroline · Nasal feeding tubes

Nasal feeding tubes I had throat surgery a week ago . Things had improved after 3 days. The pain was less and I could swallow small amounts of fluid. After having a nasal feeding tube inserted the on the 4th day, I can no longer swallow and the pain is worse [...]

Posted by shra, Wed, Feb 18, 2015 10:41pm

I don't know about this. But I want to tell you we are praying for your relief and assistance.

God bless you and your health and happiness.

Love,

Kay

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Posted by shra, Wed, Feb 18, 2015 11:14pm

Cancer Fighting Kitchen broths may be helpful along with other recipes-they helped us. Ready to pull them out again.
Best wishes to you.

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Feb 20, 2015 · @charlesdekranis1 · i was diagnosed may 2013 with head and neck and ultimately stayed [...]

i was diagnosed may 2013 with head and neck and ultimately stayed in remission (we thought, doctors too,) until this January when scans revealed stage 4 bone cancer. historically my type of cancer does not travel to the bones, but in my case did. anyone with similar experience or suggestion [...]

Posted by megm, Fri, Feb 20, 2015 6:44am

Hi @charlesdekranis1, sorry you are having to deal with this! I am one of the moderators here and will message the other members of the head and neck cancers group to see if they can share their experience. What treatment are you currently doing?

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Posted by charlesdekranis1, Fri, Feb 20, 2015 5:59pm

for the time being we are doing Zometa, controlling pain, and also researching radiation treatments, which might include the dreaded Erbitux.I am allergic and need to take it at a very slow infusion.

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Feb 13, 2015 · @juliecaroline · Head and neck

Head and neck Thank you krishnaaa and pjbeecher for your responses. I am spending my 3rd day in hospital. On Thursday tried to eat ice cream and subsequently spent all night coughing it up. I have now been placed on a nasally inserted feeding tube. I can go home when I [...]

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Feb 14, 2015 · @juliecaroline · Im in  hospital, following robotic surgery on 2 [...]

Im in  hospital, following robotic surgery on 2 tumors in the throat and on the tongue. I am not able to swallow at all and was wondering if anyone has any tips. [...]

Posted by windyhollow, Fri, Feb 13, 2015 8:27am

I don't have tips or wisdom to share Julie but I'm very sorry you are going through this and I hope things will be better for you soon. Sending prayers and hugs your way

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Posted by charlesdekranis1, Sat, Feb 14, 2015 6:18pm

the facility should have a professional who can help you learn how to swallow again

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Oct 18, 2015 · @auntiemame · Hi all. I have squamish cell cancer of of the larynx that [...]

Hi all. I have squamish cell cancer of of the larynx that has spread to my neck lymph nodes. The largest of my tumors grew so large it is inoperable - it is attached to my carotid artery. I will start chemo (Cisplatin) 1 X per week as well as [...]

Posted by craigandme, Tue, Apr 21, 2015 5:25am

HI AUNTIE MAME --
I WAS JUST WONDERING HOW YOU WERE DOING? IT'S BEEN A COUPLE OF MONTHS NOW -- YOU ARE IN MY THOUGHTS & PRAYERS --

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Posted by DisneyDreams, Sun, Oct 18, 2015 2:58pm

Hi there!!! I know this is an older post but I wanted to check in with you and see how you're doing.

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Mar 14, 2015 · @cally47 · i have been clear of throat cancer for 3 years but still [...]

i have been clear of throat cancer for 3 years but still worry especialyat night about my breathing. [...]

Posted by megm, Thu, Feb 12, 2015 10:44am

that sounds really scary-- sorry you are having to deal with that reminder!!!

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Posted by mzsadie, Sat, Mar 14, 2015 1:36am

my husband is just starting to go through this. I will tell him others have went through it maybe it will help. I keep a cool mist in the room with him but he stil wakes up scared feeling like he cant breath. sleeps a lot in the recliner. thanks

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